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willwill
9 Posts |
Posted - 05/02/2013 : 17:36:03
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I have petty spurge plants and seedlings. I wintered them over in a terrarium and they have reseeded themselves like crazy. As soon as the weather warms a bit I will be giving them their own raised bed garden.
I live about 20 miles north of NYC. Please contact me if you need some, I am happy to share, free of charge. (I am fond of all things Irish, Guinness, Jamesons, etc, hint hint). |
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mrosen
20 Posts |
Posted - 05/02/2013 : 19:48:07
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Hey, WillWill i sent some info and my contact info thru your email address...Markquote: Originally posted by willwill
I have petty spurge plants and seedlings. I wintered them over in a terrarium and they have reseeded themselves like crazy. As soon as the weather warms a bit I will be giving them their own raised bed garden.
I live about 20 miles north of NYC. Please contact me if you need some, I am happy to share, free of charge. (I am fond of all things Irish, Guinness, Jamesons, etc, hint hint).
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Thomas Haugen
94 Posts |
Posted - 05/02/2013 : 23:17:02
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Willwill, please let us know your results with transplanting. I have a theory that cultivated (non-wild) plants don't like to be transplanted so that may be the reason they often languish at about 2" to 4" tall for many months. I'm starting my seeds in 10" tall pots so they won't need to be transplanted or disturbed.
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willwill
9 Posts |
Posted - 05/03/2013 : 03:03:34
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Willwill, please let us know your results with transplanting. I have a theory that cultivated (non-wild) plants don't like to be transplanted so that may be the reason they often languish at about 2" to 4" tall for many months. I'm starting my seeds in 10" tall pots so they won't need to be transplanted or disturbed.
Hmmm, hadn't heard that before. That would be a shame, I have hundreds of them. Will post transplanting results. |
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mrosen
20 Posts |
Posted - 05/03/2013 : 12:02:16
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Does anyone know of anyone who was biopsied and diagnosed with BCC then treated with Petty Spurge (PS)and biopsied to check results? |
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Thomas Haugen
94 Posts |
Posted - 05/03/2013 : 21:08:22
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Mark, not me, but think about it. Maybe your doc has a better method to biopsy, but several of mine have done biopsies, mostly by surgically removing tissue (is that a duh?) Therefore, if the petty spurge works and your skin heals up with only a red area and maybe a minor depression where the cancer cells died, why would you let a doctor cut up that area to see if anything remains? I got rid of several lesions with spurge and seven months later the skin is like it never happened, a doc would have a hard time telling that anything was there. So a doc would have no indications to warrant a biopsy. |
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mrosen
20 Posts |
Posted - 05/04/2013 : 11:00:42
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dfi...if your still out can u update us your treatment areas as more time has past...Thanks Markquote: Originally posted by dfi
News flash!!! LEO Pharma which acquired Peplin Biotech several months ago has just obtained FDA approval to market a new product called Picato. The active ingredient in this product is Ingenol Mebutate which is the same ingredient found in the sap of the petty spurge weed. The product should be out by late March. Unfortunately, they only got approval of the product as a quick and effective treatment for actinic keratosis and not for superficial basal cell or squamous cell skin cancers for which we all know petty spurge successfully treats as well. Picato comes in two strengths 0.015% Ingenol Mebutate for facial application and 0.05% for other body areas. Time will tell to see if any brave dermatologists will write prescriptions for the higher strength Picato and tell their patients to try it on their facial basal or squamous cell cancers. At the very least the FDA approval is a start and it validates the effectiveness that most people in this forum (including myself) have experienced using the sap from the Petty Spurge weed. Here is the link to the announcement: http://www.biospace.com/news_story.aspx?StoryID=247271&full=1
Thanks to this forum and especially the entries by SoFl and Waverider for giving me the courage and knowledge to try the sap from the Petty Spurge weed which I serendipitously had been removing from my back yard the day before I discovered the forum. Fortunately, I had not removed all of it and am now treating it like the gold that it is. Starting in March of 2011, I successfully treated both a diagnosed basal cell carcinoma on my forehead and a squamous cell carcinoma on my scalp both of which my doctor wanted to remove via MOHS surgery. Had I had the MOHS surgery on my forehead, it would have easily left a scar the size of a US quarter. Within 4 months of using the petty spurge sap (1 application daily for 3 days on my forehead and 1 application daily for 5 days on my scalp), you could not tell there was ever any cancer. The skin erupted pretty violently in both locations, but now looks and feels completely normal.
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mrosen
20 Posts |
Posted - 05/04/2013 : 11:29:02
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Hi,thanks for response!My question could have been stated diferrently!! As i tried something 2 years ago that didnt work its understandable that i am getting more pressure (wife,family)on the MOHS...Interesting post by JILLY on 2/9/12 about info she got from Australian Doc who was part of Peplin trials... that there are 3 types of Carcinomas that require MOHS where nothing will work. She thinks he said that the BCC subtypes that need to be operated on are Morpheic/Infiltrating and Micronodular,Perineural Invasion? After reading this i called derm bk to get more specific analysis of my BCC biopsy report and they said it just says BCC? He said they will find out and tell me when i have the MOHS? Pretty frustating... Mark
quote: Originally posted by Thomas Haugen
Mark, not me, but think about it. Maybe your doc has a better method to biopsy, but several of mine have done biopsies, mostly by surgically removing tissue (is that a duh?) Therefore, if the petty spurge works and your skin heals up with only a red area and maybe a minor depression where the cancer cells died, why would you let a doctor cut up that area to see if anything remains? I got rid of several lesions with spurge and seven months later the skin is like it never happened, a doc would have a hard time telling that anything was there. So a doc would have no indications to warrant a biopsy.
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anivoc
668 Posts |
Posted - 05/04/2013 : 12:38:13
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Mrosen,
You bring up a VERY overlooked and important topic....There are many different types of basal cell carcinoma...and that is scary..
I went into this thinking there were three types of skin cancer. This was from my dermatologist years ago...Basal, Squamous and Melanoma with Basal being the least likely to be deadly..Well recently I have been learning there are several different types of Basal Cell Carcinoma...and that probably holds true for Squamous and Melanoma..
After reading your post I did a quick google and came up with this on Basal cell ... There are 12 different types! Yikes... No wonder some of the things that work for some people don't work for others...I have never had a biopsy that detailed what type of basal cell carcinoma I had...I am curious to see what your lab report comes back with...
Basal-Cell Carcinoma:
Typically found on the head, neck, and torso basal-cell carcinomas, small, solid elevations of the skin that grow into eroding, crusting, and bleeding craters, are considered malignant diseases because they can cause significant destruction of affected body parts, especially nerves, disfigurement, and invade surrounding tissues, however, basal-cell carcinomas rarely metastasize or kill the patient, and fair-skinned people with a family history of the disease are at a much higher risk for contracting basal-cell carcinoma than non-fair-skinned people are.
Aberrant Basal-Cell Carcinoma:
Basal-cell carcinoma can be divided into twelve types including Aberrant basal-cell carcinoma, a cutaneous condition that generally occurs in the axilla, armpits, nipples, scrotum, vulva, and perineum, and may lack any apparant carcinogenic factors.
Nodular Basal-Cell Carcinoma:
Nodular basal-cell carcinoma, the Classic example of the disease, is a cutaneous condition that occurs most commonly on the head, neck, and other sun-exposed body areas.
Cystic Basal-Cell Carcinoma:
Cystic basal-cell carcinoma is a cutaneous condition with dome-shaped, blue-gray cystic nodules.
Pore-Like Basal-Cell Carcinoma:
Pore-like basal-cell carcinoma is a cutaneous condition with carcinomas that look like enlarged pores.
Polypoid Basal-Cell Carcinoma:
Polypoid basal-cell carcinoma is a cutaneous condition with polyp-like structures generally found on the head or neck.
Cicatrical Basal-Cell Carcinoma:
Cicatrical basal-cell carcinoma is a cutaneous condition that is aggressive with unique histologic and clinical appearances.
Fibroepithelioma of Pinkus:
Fibroepithelioma of Pinkus is a cutaneous condition commonly found on the patient's lower back.
Infiltrative Basal-Cell Carcinoma:
Infiltrative basal-cell carcinoma is a cutaneous condition with aggressive deep infiltration of tissues.
Rodent Ulcer:
Also known as Jacobi's Ulcer this nodular basal-cell carcinoma is characterized by central necrosis.
Micronodular Basal-Cell Carcinoma:
Micronodular basal-cell carcinoma is a cutaneous condition with micronodular growth patterns.
Pigmented Basal-Cell Carcinoma:
Pigmented basal-cell carcinoma is a cutaneous condition with increased melanization.
Superficial Basal-Cell Carcinoma:
Superficial basal-cell carcinoma is a cutaneous condition with erythematous red patches that commonly occurs on the patient's trunk.
Basal-Cell Carcinoma Groups:
Basal-cell carcinomas can be subdivided into three main groups including Infiltrative Basal-Cell Carcinomas that contain micronodular and morphea forms of the disease, Superficial Basal-Cell Carcinomas that are the only forms of the disease effectively treated with topical chemotherapies, and Nodular Basal-Cell Carcinomas that cover all other forms of the disease and may have multiple morphologic features of many variants of basal-cell carcinomas in the same tumor.
Causes:
Typically presenting as a shiny, pearly nodule, a red patch, thickened skin, or scar tissue basal-cell carcinoma is caused by mutations in the cell's DNA that leads to the formation of molecular lesions known as thymine or cytosine dimers that make skin cells reproduce rapidly and continue growing, instead of being pushed to the surface of the skin by newly formed skin cells, and dying like they normally would. Other possible causes of basal-cell carcinoma include ultraviolet radiation from sunlight or tanning beds, commercial tanning lamps, exposure to various toxic substances, genetic mutations in the protein patched homolog-one gene that inhibits the hedgehog signaling pathway from providing information to embryotic cells on how to properly develop, and Smoothened-G protein-coupled receptor genes that help prevent abnormalities of physiological developments. Additionally, radiation therapy treatments and immune suppression therapies may also cause the disease.
Symptoms:
The symptoms of basal-cell carcinoma may include such things as sores that do not heal or repeatedly bleed, waxy white bumps with blood vessels in or around them, a reddish patch that may itch, hurt, crust, or have no discomfort at all, a smooth elevated growth with a rolled border and an indented center, a pearly, transluscent, red, pink, white, black, brown, or tan nodule, and yellow, white, or waxy scar-like areas on the skin that have poorly defined borders.
Diagnosis:
Basal-cell carcinomas may be diagnosed through such means as a family history of the disease, physical examinations, and skin biopsies performed under local anesthesia.
Treatment Options:
Based on the location of the tumor, the size of the tumor, the age of the patient, and other contributing factors, cryosurgery with a temperature probe and cryotherapy instruments that typically produce a very successful cure rate, repeated electrodesiccation and curettage that may include up to five cycles, photodynamic therapy with the application of photosensitizers such as methyl aminolevulinate, immunotherapy using euphorbia peplus, or imiquimod cream, for the treatment of superficial basal-cell carcinomas, radiation therapy to eradicate the disease through internal brachytherapy or radiotherapy, chemotherapy with such medications as 5-flurouracil, microscopically-controlled Mohs surgery that produces up to a 99 percent cure rate of primary basal-cell carcinomas, Johns surgery that may remove several layers of skin until there are no signs of the cancer left, and surgeries with frozen section histologies, or parrafin-implanted fixed tissue pathologies, are available treatment options for basal-cell carcinomas.
Risk Factors:
Common risk factors for basal-cell carcinomas include long term daily exposure to the sun, having had several severe sunburns early in life, family members with a history of the disease, having many moles on the patient's body, overexposure to x-rays or radiation, red or blonde hair, freckled skin, light-colored skin, and gray, green, or blue eyes.
Prognosis:
The progosis for basal-cell carcinoma typically depends on how early the disease was diagnosed, and patients with the ailment should receive regularly scheduled check-ups, and perform monthly self-examinations, to ensure the cancer has not returned.
Sources:
This Article was compiled from several websites that provide much more information about basal-cell carcinoma including:
http://.www.cancercenter.com/basal-cell-carcinoma/basal-cell-carcinoma-symptoms.cfm http://www.mayoclinic.com/health/basal-cell-carcinoma/DS00925/DSECTION=causes http://www.healthscout.com/ency/1/199/main.html http://www.basalcellmohs.com/basal_cell_3.html http://www.nlm.nih.gov/medicineplus/article/000824.htm |
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mrosen
20 Posts |
Posted - 05/04/2013 : 14:38:02
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anivoc, Thanks for info...greatly appreciated...Pretty scary stuff and i used a different word then Yikes! Superficial Basal Cell Carcinoma is the only one listed where Euphorbia Peplus is indicated...? The Australian Doc(from the Peplin trial) that talked to Jilly mentioned those 3 that wouldnt work with PS and would need MOHS...does that mean all those others would(i dont think so?)...theres so many. Theres no way of Knowing what kind of BCC people who post here and were succesful(unless indicated) have? Some of the posts on this forum that looked succesful(i hope they still are) using PS werent just superfiscial,atleast according to the discriptions of the twelve? Very frustating for sure... anivoc,you mentioned you wanted to see my BCC lab report,did u mean from the biopsy i already had or if get MOHS? Mark |
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mrosen
20 Posts |
Posted - 05/04/2013 : 15:16:06
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anivoc...i should have read info u sent more closely. The part: Basal Cell Carsinoma Groups talks about the 3 subtypes which corosponds with Jilly info...Mark |
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anivoc
668 Posts |
Posted - 05/04/2013 : 20:41:29
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Mrosen...I was a referring to what the Doc told you..that he would find out what type you had before the Mohs surgery..
I wonder how many dermatologist actually know all of the varieties and sub species..
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mrosen
20 Posts |
Posted - 05/05/2013 : 09:19:03
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anivoc...Actually let me clarify, the derm doc said my biopsy report just says BCC and when i go for the MOHS they will find out what kind it is? I am going to go to derms office monday to get report anyway and call lab directly to see what info they have? anivoc..you had some MOHS done? Around nose area? Thanks for info Mark |
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mrosen
20 Posts |
Posted - 05/16/2013 : 12:49:48
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anivoc, i wanted to let u know i was able to pick up lab report from DErms office today...Diagnosis: SKIN BIOPSY,Left Nasolabial Fold- Basal Cell Carsinoma...thats all it says? There is no BCC type listed. I tried calling the lab directly but they refered me back to DErm Doc. So in terms of finding out if i have one of the BCC subtypes that the PEPLIN TRIAL doc mentioned Petty Spurge wouldnt work on ...I dont know? Maybe the trials were set up and conducted to market a product for only superfiscial issues at this point? People are using the sap directly here and some for longer or more frequently with some success on what assume are not all superfiscial BCC but go deeper? Anyones thoughts on this would be appreciated...Thanks Mrosen quote: Originally posted by mrosen
anivoc...Actually let me clarify, the derm doc said my biopsy report just says BCC and when i go for the MOHS they will find out what kind it is? I am going to go to derms office monday to get report anyway and call lab directly to see what info they have? anivoc..you had some MOHS done? Around nose area? Thanks for info Mark
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redman9
1 Posts |
Posted - 05/16/2013 : 13:44:16
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Just found forum thread today. Joined up. Have used PS (found after much googling) found growing in mother's backyard by the ton, in Petaluma, CA. I live in Hollywood. I have not found it locally ...yet. I brought back a large shallow pot that I packed full of mature PS plants on my last visit to see my mom. I have used the sap on quadrants of my face. One section at a time. I heal very quickly and one week is all it takes from application to new skin. Maybe 8 days... I LOVE this plant! I have LOTS of ruined skin from living in Mexico for 8 years, young and dumb, without any sunscreen etc. I am of Irish descent. 'Nuff said. My plants have now gone to seed, turning yellow, getting gangly, etc. I will attempt to repot with some of the same soil and see if I can get them to regrow here in the LA heat/summer. Guess I'll snap some pics to help others as I am always so appreciative when others do so. Note: Some of my worst areas bubbled up a lot, and had whitish raised "spots" or odd little shaped areas. I can only guess that these areas were the most cancerous as they reacted the most and took the longest to heal, revealing much deeper damage than the surrounding skin, which seemed to be just "turniing over" like a skin peel. Anyway, I have done left cheek, left side above that, left half of forehead, and am on third day and application on right side of forehead. My plants are about sapless now so I will have to wait to continue. I plan on doing my neck, shoulders, and forearms, as sap permits. I also just bought 90 seeds from Beautanicals. Why not? Will keep posting as time and updates occur.
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mrosen
20 Posts |
Posted - 05/17/2013 : 11:37:40
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Just following up on some of my previous posts wondering if anyone out there knows of anyone succesfully using PS on Basal Cell Carcinoma that was a more infiltrative type? I noticed that svanip had success and his was multifocal superfiscial BCC,My BCC area looks different and covers a larger area maybe the size of a nickle where there is AK and now BCC.Also i believe Waverider has had success on superfiscial BCC?Its hard to get info as some have left forum and i dont know what outcomes were and weather they new if they were treating a more invasive BCC with the PS? MY BCC area is very angry right now i think all this stress and anxiety is making it worse...i need to start moving forward on some type of treatment and may start VITC paste(dmso?)at least i think it may hold BCC area till i can get some PS or get MOHS (which i am trying to avoid)The iodine looks interesting also...My BCC goes around my left nasolabial fold which is under left nostral(and against)and wraps around left side. Mrosen |
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D23
3 Posts |
Posted - 05/19/2013 : 12:41:43
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quote: Originally posted by willwill I have petty spurge plants and seedlings. I wintered them over in a terrarium and they have reseeded themselves like crazy. As soon as the weather warms a bit I will be giving them their own raised bed garden.
I live about 20 miles north of NYC. Please contact me if you need some, I am happy to share, free of charge. (I am fond of all things Irish, Guinness, Jamesons, etc, hint hint).
I would love to get some Petty Spurge seed if still available. Please let me know. Thanks |
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D23
3 Posts |
Posted - 05/23/2013 : 03:33:48
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I guess willwill only has plants. Would anyone be able to send me some Petty Spurge seed? Will send SASE right away. Can also send some herb / garden seed along with if you like. Please let me know. Thanks
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Thomas Haugen
94 Posts |
Posted - 05/23/2013 : 09:04:43
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To get seeds, email me through this forum (click on my name).
Tom |
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D23
3 Posts |
Posted - 05/23/2013 : 09:55:00
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quote: Originally posted by Thomas Haugen To get seeds, email me through this forum (click on my name). Tom
Hey Tom, That was actually the first thing I tried, but there is no contact link in your profile. "My Contact Info No info specified..." So hopefully you can click on the contact link in my profile. Thanks |
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Thomas Haugen
94 Posts |
Posted - 05/23/2013 : 10:37:36
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Sorry, now set to receive email.
Tom |
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trueson
44 Posts |
Posted - 06/05/2013 : 08:12:09
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I have just started using Petty Spurge on a Nodular BCC on the top edge of my lower eyelid. After 4 weeks of using a 5% iodine solution and then 2 weeks using a 28% solution with disappointing results I thought it was time to try something else.
10 hours after my first application of Petty Spurge sap the whole lower eyelid area swelled up. I was very careful to only apply the sap to the very lowest edge of the suspect area in order to keep it away from the eye.
It is now day 2 and the eye looks frightening with the previously described "peperonie" skin, and areas of pus have formed. In addition the BCC itself has become painful to the touch. Three pics below show before starting iodine, after 6 weeks of iodine and on day 2 of Petty Spurge.
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trueson
44 Posts |
Posted - 06/05/2013 : 08:19:42
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I forgot to mention that I have been experiencing a slight nausea since starting the Petty Spurge, as if my stomach has been upset and with frequent burping. I think I read earlier in this thread of someone else experiencing this too. |
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mrosen
20 Posts |
Posted - 06/05/2013 : 08:42:43
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Trueson...Great pics thanks for posting this...it cetainly helps others trumendously..Is the 3rd pic the petty spurge?I am also very interested in that you said you have had some naseau or stomach issues? Please continue to update...Thanks !quote: Originally posted by trueson
I forgot to mention that I have been experiencing a slight nausea since starting the Petty Spurge, as if my stomach has been upset and with frequent burping. I think I read earlier in this thread of someone else experiencing this too.
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trueson
44 Posts |
Posted - 06/06/2013 : 04:45:35
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Yes third pic is Petty Spurge.
I applied another dose last night and it has really gone to work today! It is getting a bit painful actually, like a small bullant bit me on the eyelid. Its even jumped over to the upper eyelid, probably while I was sleeping and the eyelids were together. As long as it does what it is supposed to I am not complaining though. It has travelled right up to the edge of the lower eyelid now. Amazing stuff!
Day three pic attached below.
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Edited by - trueson on 06/06/2013 04:49:51 |
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mrosen
20 Posts |
Posted - 06/06/2013 : 05:50:05
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trueson...your probably right about eyelids touching...PLEASE BE CAREFUL. Are u done treating with sap? Also, are u still experiencing naseau and stomach(or other)issues in regards to sap use? Thanks for the continued updates. quote: Originally posted by trueson
Yes third pic is Petty Spurge.
I applied another dose last night and it has really gone to work today! It is getting a bit painful actually, like a small bullant bit me on the eyelid. Its even jumped over to the upper eyelid, probably while I was sleeping and the eyelids were together. As long as it does what it is supposed to I am not complaining though. It has travelled right up to the edge of the lower eyelid now. Amazing stuff!
Day three pic attached below.
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trueson
44 Posts |
Posted - 06/06/2013 : 06:11:55
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Thanks mrosen-yes I will be careful. I think I'll stop any further applications now and see how it progresses. It's so vigorous at the moment that I don't think it needs any further encouragement.
The nausea is most intense just after I apply the sap. But it's not really bad at all, it's just that I am aware it's there. At the moment I can feel it a tiny bit if I focus but nothing to worry about. |
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trueson
44 Posts |
Posted - 06/08/2013 : 07:56:05
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A strange thing happened today. For the last few years I have noticed that when I go out to walk in a cold wind my right eye starts tearing up from the cold. My left eye stays dry.
Well today I went for a walk and after a while my right eye started to tear up again and it just kept on going and going and going. And it started to sting like crazy. I sat down and covered my eye to protect it but nothing would help so I had to walk home and it continued to tear up and sting for the next 3 1/2 hours. Very strange and painful. It felt like the eye was being irritated which caused it to tear up but the tears themselves rather than soothe the irritation, only caused further irritation-like my tears themselves were irritating.
Its settled down alot but still not perfect 6 hours later. I have no idea why this happened but I wonder if the Petty Spurge has found it's way into the tear ducts and 'polluted' them. Or, even more scarey, maybe the PS found some cancer in my tear ducts. Or maybe my eye went through some sort of healing crisis.
Pic below is from day four (sorry it's scarey). The PS seems to have found cancer in my top eyelid where I had no idea I had it. If I had gone ahead with having it cut out it looks like alot of it would have been left behind and required further surgery in the near future. Also it has gone all the way to the very top edge of my lower eyelid. All in all it's travelled about 1 inch from where I applied it.
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anivoc
668 Posts |
Posted - 06/08/2013 : 15:56:40
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Trueson...
Brave soldier dude... I am curious about the upper eye lid....It really doesn't make sense to me that you would have skin cancer there. IF I am looking at the pictures right this is in an area where the fold is and the part that is white is in the middle of that fold...That area would get very little UV exposure unless you fell asleep in the sun and got a really bad burn...guess that could have happened but that area seems suspicious to me...
I am wondering if while you are asleep you might be rubbing your eyes because they hurt or itch and transferring the petty spurge up to the upper eye lid...
The next question is will petty spurge have an effect on your healthy skin....
The only way to know is to try it on an area that never gets sun and for sure is healthy skin...I usually do this on my upper thigh.. I would suggest seeing if petty spurge give you a reaction on healthy skin...
You could just be more sensitive to it than others...kind of like poison oak effects some people and has no effect on others ( like me)
Just hate seeing you going through the pain if all it is is a allergic reaction. If you do get a reaction on the known healthy skin area I would cover the area on the lower eyelid at night so you can't spread it around...
Just my thoughts on your situation...take it for what it's worth...
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trueson
44 Posts |
Posted - 06/08/2013 : 17:19:08
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Hi Anivoc, thanks for your thoughts. You make a good point. I have assumed that anywhere that pus has formed is a pocket of cancer, and believe from previous posts that PS seeks out cancer areas and attacks them which I thought would cause pus. Perhaps I am wrong to assume this but I thought this is how PS works. An area of pus has also now formed right on the edge of my lower eyelid at the little 'V' in my eyelid which is the top edge of the BCC. I guess the end result will tell me if this is correct.
Re the possibility I am having an alergic reaction: this is possible but when I first brought my plant home I applied a drop of sap to an area on my face between my eye and my ear, an area my doctor said was pre-cancerous. I left it overnight and there was absolutely no reaction-I couldn't even see where I had applied it. This gave me the green light to try it on my eyelid.
After I first applied the PS to an area at the lowest edge of what is now the main scab, the PS quickly travelled 'North' towards my eye and created a big area of pus just under my eye at the exact place of the BCC and under it but nowhere else. It could have travelled 'South' or 'East' or 'West' but it made a bee-line for my eye. This has led me to believe that it 'seeks out' cancerous tissue.
Your other point about why I would have cancer on my top eyelid: good call - I can only think that as a child and teenager I would lie in the sun for hours with my eyes closed, sometimes on the flat tin roof of our house and received many burns that way as my skin is fair. Maybe this was enough to produce cancer in my later years, I don't know (my doctor believes this is so). My eye is normally not so puffy and my top eyelid would have got a fair amount of sun this way. But I would be happy if this is not so.
I agree that the PS was probably transfered to my top eyelid while I was sleeping by being in contact with my lower eyelid or maybe by me rubbing my eye.
By the way all tearing up from my right eye has now stopped but I won't be taking any more walks in the cool evening air any time soon! :) |
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willwill
9 Posts |
Posted - 06/08/2013 : 18:43:57
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It is my understanding that Petty Spurge can cause blindness if you get it in your eye. I would be very careful about getiing it anywhere near there. |
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trueson
44 Posts |
Posted - 06/08/2013 : 22:20:27
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Thanks Willwill. Yes I have been very careful not to get any of the actual sap into my eye and thats why I applied it 1/2 inch or so from the eye. It has travelled itself inside the skin up to the edge of my eye and so far (apart from the strange experience yesterday)does not seem to have irritated the eye.
I am heartened by the earlier posts by SoFl who also used it carefully near his/her eye without ill effect. In the future I would use no more than one part-drop of sap per day on my face as this seems to be plenty to get a reaction happening. |
Edited by - trueson on 06/08/2013 22:23:23 |
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trueson
44 Posts |
Posted - 06/11/2013 : 17:16:38
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Just a quick update: my eyelid is healing nicely and I am hopeful that the PS has found and addressed all of the BCC but I won't know for sure for a few more days. No more problems with the eye itself being effected by the PS either. Will post again soon.
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anivoc
668 Posts |
Posted - 06/11/2013 : 19:12:19
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Looking REAL promising   
Fingers crossed! |
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casunlover
9 Posts |
Posted - 06/16/2013 : 18:45:55
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How do I get undamaged petty spurge seeds, in the mail? Is there some place I could order where I'd have a better chance? Thanks |
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trueson
44 Posts |
Posted - 06/18/2013 : 08:24:29
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Thanks anivoc. Unfortunately the Petty Spurge hasn't really worked. The face is all healed up now and the PS has done some good but has not removed the whole of the BCC on the very edge of the eyelid.
There seems to be two parts to my BCC-the outer Nodular part and the inner BCC which is white and pearl-like and like a hard lump. The PS has done a reasonable job on the outer but hasn't touched the inner.
I'm running out of options now. I will do another round of PS but I have also booked in to see an Anthroposophical doctor with a view to getting some Iscador or misletoe injections which create a fever in the body which helps to attack the cancer. I have also booked in for the eyelid surgery but will cancel or postpone this if something else works. I might also see a homeopath. It's late here now so I will post some pictures later. |
Edited by - trueson on 06/18/2013 08:25:57 |
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anivoc
668 Posts |
Posted - 06/18/2013 : 08:39:11
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Hi Trueson
Sorry to hear the bad news....
It's coincidental that we have two people treating eyelids at the same time.. Nunga48's experience is worth looking at as an option....gutsy..scary... but an option Bloodroot is NOT for the faint of heart but.... here's a link check it out for consideration..... http://topicalinfo.org/forum/topic.asp?TOPIC_ID=1573 |
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trueson
44 Posts |
Posted - 06/19/2013 : 04:11:57
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thanks for the information anivoc. Much appreciated! I had lost touch with what others were doing on the forum being absorbed by my own trials. I have just posted a question over there. Thanks again. |
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peterjm1003
11 Posts |
Posted - 06/30/2013 : 00:18:03
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Dear Trueson
Ouch!!
One of the main reasons I advise patients to have a proper check and advice from their doctor before starting something like this. I am an Australian skin cancer doctor - and I approve of people using topical treatment - if they are informed and that is what they want - anything on the head and neck - especially eyelids is fraught with danger.
I have a specialist eyelid surgeon that I refer these to - because its clear from the photo that this has extension around the palpebral margin. The reaction on the top lid is due to midline crease irritation - almost certainly not from any additional cancer.
Using petty Spurge sap directly, I would limit to actinic keratoses or what look like superficial BCCs or IEC, in other words same sort of application as efudix / aldara etc. Again avoiding anything within 5 mm or sometimes more of eyelids, nostrils, lips. The advantage of spurge, or (ingenol mebutate / Picato) is it only needs one or two applications.
Also you probably are making an assumption that this is only a nodular BCC. From my experience, at least 30 % of these will be mixed sub-type - so you may have micronodular, sclerosing or morpheoform BCC in there. If these invasive subtypes are not removed, the recurrence will be horrendous and you could need a complete new eyelid. Unfortunatley if you live in the US and are not insured it will cost you a lot to get definitive treatment for this - whereas in Australia, it probably only cost you the time to get a review and biopsy from me and a trip to see my surgeon who also works for no gap payment.
Good luck with it anyway - I would suggest have the surgery and be done with it and forget about homeopaths and other quackery
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trueson
44 Posts |
Posted - 06/30/2013 : 08:10:33
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Hi Peterjm1003. Three posts ago I wrote that my BCC seems to have two different parts. I have seen two GPs and one specialist eye surgeon about my BCC, none of whom told me that it was more than one type of BCC - I had to discover it myself.
Thanks for the info about the upper eyelid - it sounds to me like that is a plausible explanation.
I realise that treating skin near the eye is dangerous but I don't think that should necesarily stop you from treating it as long as you are very careful, as the link below shows. As many forum members here have attested to, just because you have a BCC sugically removed doesn't mean thats the end of the story as it seems that in many cases the BCC returns.
http://www.topicalinfo.org/forum/topic.asp?TOPIC_ID=1573
Finally, I don't believe Homeopaths and Anthroposophical doctors (who are licensed medical doctors) are "quacks". Have you investigated their methods with an open mind, and preferably experienced their treatment first hand? I have, and I have had impressive results.
Maybe my error was to not consult them first before trying these topical treatments. One of the Anthropsophical doctors' main treatments for cancer is mistletoe which apparently is used in 60% of cancer treatments in Europe, either seperately or together with conventional medical treatments. There is a wealth of double blind trials on the effectiveness of mistletoe.
Anyway thank you for the good wishes. |
Edited by - trueson on 06/30/2013 08:16:07 |
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Thrivalista
5 Posts |
Posted - 07/14/2013 : 23:27:47
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Thanks to SoFL and all the others who've shared their experiences using (and growing) Petty Spurge.
What worked (for me): It was following the suggestion of lifting the scab to re-apply the sap and laying the dampened leaf across the spot after "sapping" and before bandaging, that finally did the trick for a flat shiny spot that refused to soften and dissolve (and that came back after last year's faster response to treatment).
And how: I've also noticed that spots take a long time to clear on me, as they have for some others. Maybe these (non-biopsied) spots aren't "the right kind" of BCCs? But some here have had success treating warts, age spots, nevis (?sp) and even at least one melanoma w/PS, so maybe that's where PS's caustic nature does the trick. It cleared a mole for me last year that I'm 99.5% certain was not cancerous.
It'd be great to know more from the doc who said there were 3 BCC sub-types that PS didn't work on. It'd be useful to know the maximum treatment time that conclusion was based on. If they didn't treat those sub-types for more than 3 days, it's unclear how they can be sure the PS wouldn't be effective with a longer course.
Side effects: As some others have experienced, I get fatigued when treating the spots. My guess is that it's because I have an auto-immune disorder (of which fatigue is one frequent symptom), so perhaps my immune system over-reacts to the caustic and other characteristics of petty spurge? Or perhaps it's the inflammation which creates the systemic fatigue?
Identifying the plants: Euphorbia Peplis/Purple Spurge doesn't look like E. Peplus/Petty Spurge much at all. We've noticed here that people confuse Petty Spurge with Chickweed more readily than they do with Purple Spurge. Purple Spurge/E. Peplis has gray-green leaves with a reddish-purple mid-rib (thus the name) and is prostrate. Our friend Petty Spurge/Peplus is upright, the leaves are a different shape, and they're paler and more yellow-green in color.
Tinctures/Extracts: @Brigid, have you found an alcohol based tincture to be effective? I'm concerned about it increasing the burning (which is a bit fierce this evening) and about how the alcohol might interact or interfere with ingenol mebutate, the effective compound in Petty Spurge.
Growing: We've never successfully transplanted petty spurge from the garden to indoors - it always dies within a couple of weeks regardless of conditions. And we're highly experienced gardeners! But it comes up like crazy in our garden, especially now that I let it go to seed. We'll be starting some in pots for growing in a cool sunny window here in our Northeastern US climate over the fall and winter.
Sharing: I have enough that I could share maybe a dozen plants with people. I pull them and put them in a glass of water and keep them in the bathroom where they last a couple of weeks while I snip and sap. I'm in the westernmost county of New York state, but am not prepared to ship plants. If you're willing to come here to pick them up, I'm happy to pull some and give them away. Most of these are 10-12" tall, and quite bushy, so would get you through treating several spots. And they'll be going to seed very soon, so you could collect the seeds (we use an artist's paintbrush to make picking them up easy) and have your own source.
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Edited by - Thrivalista on 07/15/2013 17:28:26 |
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trueson
44 Posts |
Posted - 07/15/2013 : 04:18:04
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Hi Thrivalista - an intetesting post especially the news that treating for longer/more intensely worked for you. That's great to hear!
After my last unsuccessful attempt with Petty Spurge I am currently treating my eyelid BCC for a longer period - I am up to 7 days now applying the sap every morning and have also found that I can apply the sap directly to the BCC a few mm from the eye without much discomfort. I got the idea of modifying the PS from Nunga48's post in another thread on eyelid BCC and black salve, and the fact that the commercial PS cream uses a more dilute form for the face.
I think the fact that my plant is going to seed has made it less potent and more suitable for use so close to the eye. I started off diluting the sap with a few drops of water and then seeing how my eyelid reacted. It seemed to tolerate it OK so I gradually reduced the water each day until I had full stregth sap.
The PS seems to be going deeper this time. I think the problem earlier for me was the PS reacting to surface BCC and AK but not going deep enough (part of my BCC is also hard and shiny and seems to be a deep lump).
I have also started Iscador/mistletoe injections to support my immune system but have not noticed any effects yet. |
Edited by - trueson on 07/15/2013 04:29:22 |
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Thrivalista
5 Posts |
Posted - 07/15/2013 : 17:29:52
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Interesting theory on the sap's potency, trueson. I'll keep that in mind when I start to work on the spots on my face. |
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trueson
44 Posts |
Posted - 07/21/2013 : 08:30:57
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Thrivalista: how many days in total did you end up applying PS when you successfully treated your BCC? |
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Brigid
68 Posts |
Posted - 07/22/2013 : 12:15:19
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Hi Thrivalista,
No, I"ve never tinctured the PS, agree w/ you that the alcohol would add more to the burning. Tinctures are stronger in general than teas from dried plants, (not that we ever dry ps before using) so in theory you could tincture the whole plant 1:5 ratio of plant to grain alcohol and then if the burning was intolerable, you could put the # of tincture drops you planned to use in a very small amt. of water and boil off the alcohol (for 3 minutes after boiling.). Many herbalists will tell you that boiling alters plant constituents but I've found it to work fine on some other tinctures I've used.
For the burning, I use homeopathic belladonna, every 15 minutes if it's bad enough. Also, there are a number of cooling, anti-inflammatory herbs in common use. I don't know whether taking them internally (which you would do for immunity) would counteract the PS. I'll look into this.
As for the fatigue, some people don't experience it, and I do think it's about general immunity--I might not assume it's an autoimmune dysfunction, though it could be. Certain herbs and supplements are immune-supportive or stimulating. Which ones you take depends on your constitution and overall health picture.
quote: Originally posted by trueson
Hi Thrivalista - an intetesting post especially the news that treating for longer/more intensely worked for you. That's great to hear!
After my last unsuccessful attempt with Petty Spurge I am currently treating my eyelid BCC for a longer period - I am up to 7 days now applying the sap every morning and have also found that I can apply the sap directly to the BCC a few mm from the eye without much discomfort. I got the idea of modifying the PS from Nunga48's post in another thread on eyelid BCC and black salve, and the fact that the commercial PS cream uses a more dilute form for the face.
I think the fact that my plant is going to seed has made it less potent and more suitable for use so close to the eye. I started off diluting the sap with a few drops of water and then seeing how my eyelid reacted. It seemed to tolerate it OK so I gradually reduced the water each day until I had full stregth sap.
The PS seems to be going deeper this time. I think the problem earlier for me was the PS reacting to surface BCC and AK but not going deep enough (part of my BCC is also hard and shiny and seems to be a deep lump).
I have also started Iscador/mistletoe injections to support my immune system but have not noticed any effects yet.
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Thrivalista
5 Posts |
Posted - 07/22/2013 : 12:34:02
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Trueson, I apologize if I wasn't clear. Lifting the scab and/or scraping it away combined with the sap+leaf technique is helping that persistent spot *to soften and dissolve*. It's not all gone yet (I've been treating it for over a week), and one small section of it is particularly resistant. But it is dissolving more than last time. I'm now alternating the sap + leaf treatment with an occasional day of just aloe to rest a bit. I'm reluctant to give the atypical cells a day to recover and get tougher, but need to balance that with managing pain and fatigue so I can work. (I have several spots going on my forearm, since the PS spread and they "lit up".)
About sap strength during seeding - it would be good to see the science on this. Some compounds in plants do decrease during flowering and seeding - for example, the volatile oils - but I don't know plant chemistry enough to know if the diterpene esters fall into that category. I know the sap is working, albeit slowly, but I'm not sure I could handle stronger/faster with so many spots that started doing the PS thing.
Brigid: thanks for responding. I think I'll try the leaves in water solution that worked for SoFL as a cushion for times when I can't get the plants to grow.
I didn't mean to imply that every person who had the fatigue reaction has an auto-immune disorder, I was just putting that out there as one possible piece of the puzzle. (There are several other things I'm doing for my immune system, which are also beneficial for fighting cancer in general.)
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Brigid
68 Posts |
Posted - 07/22/2013 : 12:49:55
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Speaking of mistletoe causing fevers in the body, isn't there a heat treatment for skin cancers that's said to be effective? I've read that it also can cause burn damage to the skin, so I'm not sure I'd use it on eyes or lips or nostrils. It's not a self-treatment. Has anyone tried it? Is it used more in Europe?
quote: Originally posted by trueson
Thanks anivoc. Unfortunately the Petty Spurge hasn't really worked. The face is all healed up now and the PS has done some good but has not removed the whole of the BCC on the very edge of the eyelid.
There seems to be two parts to my BCC-the outer Nodular part and the inner BCC which is white and pearl-like and like a hard lump. The PS has done a reasonable job on the outer but hasn't touched the inner.
I'm running out of options now. I will do another round of PS but I have also booked in to see an Anthroposophical doctor with a view to getting some Iscador or misletoe injections which create a fever in the body which helps to attack the cancer. I have also booked in for the eyelid surgery but will cancel or postpone this if something else works. I might also see a homeopath. It's late here now so I will post some pictures later.
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trueson
44 Posts |
Posted - 07/25/2013 : 08:18:09
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Brigid, I haven't used it but there is a centre here in Australia which uses hyperthermia for cancer. I contacted them and unfortunately their machine isn't suitable for head and neck treatment but may be useful for the rest of the body.
http://integrativeclinic.com.au/hyperthermia
Thrivalista, thanks for your reply to my question. I hope you are successful with your treatment and your perseverance is rewarded. It was actually SoFl who originally gave me the idea that the sap from a seeding plant is less strong and it seems to be born out by my experience. |
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Crazyashelllol
3 Posts |
Posted - 07/30/2013 : 21:06:03
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Yeah, the scab / rash that appeared MUST be cancer. It's in no way a result of the crazy **** you've put on your face.
Lolwow. |
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