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BasketsByJill

Afghanistan
3 Posts
Posted - 09/21/2007 :  15:40:00  Show Profile  Reply with Quote
All you Aldera users...Please give your opinion.

Aldera Eye Reaction:

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I have had over 30 surgeries for BCC including 2 Mohs on my face. I have been scared to death to use Aldera for Akc/bcc - I have heard horror stories. My skin looks like a road map due to surgeries so I finally caved in. They treated a spot above my eye and my ear. It was such a horrifying experience. At first I thought -this is not so bad. I did not have the reactions that I heard of. The joke started after the third week. OMG - horrific did not begin to even explain. But I did not go to the Dr. as I thought it was "normal". Long story short - a staff infection set in and to this day -several months later - it is still pink and put it this way - a scar would look much better! Today (9/21/07) my Dr. told me that he wanted me to use Aldera on my entire face -yea right!!! He said that my reaction was not "normal" and that laser will fix anything that does not heal on its own..of course at my expense - insurance does not cover laser. We decided to compromise and start on my nose and upper lip. Needless to say - I am very scared. My eye I was able to cover up with a bandage - and did for OVER A MONTH. My nose and lip would be impossible. I guess I am looking for reassurance for anyone that had had a pleasant experience and if so - how often did you apply it - what time of day etc. Even post bad experiences too. I really appreciate any opinions I can get. Good, bad and ugly. Thank you so much!

anivoc

668 Posts
Posted - 09/22/2007 :  09:47:31  Show Profile  Reply with Quote
Yeouch!
You have really been through a tough time.

Laser is a new approach and no defined procedures yet. Another poster had a large BCC blasted first with laser then aldera. If I understood you right that is just the opposite of what your doctor is offering.

Here's her post: It is in the Sunspot ES is best thread.

quote:
Originally posted by Kathi

Anivoc............sorry it took me so long to get back to the board but we've been on vacation in sunny Florida. I had my head covered with hats the whole time (lol). I wanted to let you know about the CO2 laser my derm used on my scalp for the basal cell. It was painless, bloodless and over within 5 minutes. He gave me a sample size of Aldera to use once a day every other day for two weeks. I've just finished and will report back to the derm May 29th for a follow up visit. I believe this treatment is 99% effective just like Mohs surgery only there will be NO scar and NO hair loss! I would do this again in a heart beat. I hope this helps you.


Kathi had also had Levulan / Laser treatment done on her whole face previous to this post with good results.

It seems like laser should be covered and just because an insurance company initially says something isn't covered doesn't mean it isn't.

You've got to fight for what is right.

Take some time and go through the forums here. I have used bloodroot with ouch effective results but the bcc returned. Curaderm with semi unsatisfactory results, sunspot es with a good result on one, unsatisfactory on 2 others. I am now trying the eggplant vinegar mixture and the jury is out. Several people have tried the combo "Kitchen sink" approach with good results. I have had aldera packs sitting in my Med cabinet for @ 2 years and after the bloodroot just couldn't bring myself to use them.

I have Kathi's e-mail address if you want to speak with her ( being as the e-mail system doesn't work on this BBS) e-mail me at topicalinfo@Gmail.com and I will put you in touch with her.

Good luck and prayers going out for your full recovery.


Tom
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Disclaimer: The three most common types of skin cancer are basal cell carcinoma, squamous cell carcinoma, and melanoma. While melanoma is the most dangerous type, keep in mind that any cancer and potentially some cancer treatments can cause injury or death. The various views expressed in these public forums should not be considered as medical advice. See your qualified health-care professional for medical attention, advice, diagnosis, and treatments.