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simple_me
USA
10 Posts |
 Posted - 10/04/2007 : 18:12:59
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Hi. I found your site, and I am hopeful. I have battled vulvar carcinoma on and off for years. This time, it's back with 2 lesions that bleed when touched. The doctor has basically told me I have to have my vulva (and some surrounding areas) removed. Please understand, I am not trying to be graphic here, but I am desperate. I am only 36, with a two-year-old son, and a wonderful, younger hubby. I don't want to be maimed.
I have read through many treatments posted here, and I am wondering if any of them might be suitable to try for me? I searched everywhere for a site dedicated to my specific situation, but to no avail. So please forgive the intrusion, and if anyone can direct me or give me useful info, I would be very appreciative.
Thank you kindly!
Oops..I forgot to add; previous treatments include: laser, efudex, aldera, and more laser. Thanks.
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Edited by - simple_me on 10/04/2007 18:14:18 |
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dan
611 Posts |
Posted - 10/04/2007 : 23:09:25
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simple_me, you are very welcome here. Your predicament treatment-wise sounds not much different than skin cancer. Hopefully you can find some help in this forum.
Because it is in a sensitive area, I think your best bets may be Curaderm or Sunspot ES. There is a fair amount of speculation in our forums that candida (yeast) infections can be a cause of skin cancer. And since candida infections are so common, you might find benefit in an anti-candida diet (low sugar and starch). Other things to consider trying are coconut oil or yogurt, both orally or topically, to reestablish the good bacteria that keeps candida in check. But I am no expert of course on vulvar cancer. |
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simple_me
USA
10 Posts |
Posted - 10/04/2007 : 23:24:51
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Dan, Thank you. I am very appreciative of your input. I needed some guidance of some things to choose from, because of exactly what you said--it is a sensitive area. And while it seems people get good results from bloodroot, it seems that should be my very last resort, as that may be too harsh for my particular area.
After poring through a lot of the information here (which by the way, I am so grateful for the very detailed info here!) I was thinking of Curaderm, but I can't find where to purchase it. Is this something I need to get a script from my doc for, or am I just not looking in the right places?
Thanks so much! |
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dan
611 Posts |
Posted - 10/04/2007 : 23:40:24
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| There are several places to order Curaderm found using a Google search "Curaderm". For example, try http://www.curaderm.net ($120 + $10 delivery, never tried them myself) Sunspot ES is about $30. You do not need a prescription for either. Good luck! |
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Gabriele
1 Posts |
Posted - 04/24/2008 : 15:45:23
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| I suffer from the same ailment. Are there any new ideas on how to treat a reoccurance after surgery? |
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dan
611 Posts |
Posted - 04/27/2008 : 21:11:36
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| Gabriele, topical black walnut hull extract is a new approach that might be worth trying. There has been not much feedback on this yet but it does appear to work (or not) gently. |
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marsha
USA
122 Posts |
Posted - 07/22/2008 : 23:00:15
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| simple me,I was wondering how you are doing? I had liasions on my labias,and had one labia cut off. haven't been re-checked in a year or two. But now from reading stuff on this site and learning about curaderm, acid body and a few other things I wold not try blood root. What did you do? How did it work? |
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Janl51
USA
5 Posts |
Posted - 05/10/2010 : 15:02:59
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| I had to reply to this post as I, too, have just been diagnosed with V.I.N. Stage 3 (the precursor to vulvar cancer). Drs suggested I have this area cut off. I told them no. Found this forum and have tried cymilium, also the coconut oil mixed with melatonin and a vitamin D-3. I think the cymilium helped some. Anyway, someone told me about Alka V-6 (sold at www.orizonresearch.com) This is not an MLM, thankfully, so I'm not out here trying to make money off of it. I began taking it two weeks ago today and within 10 days, it was already looking better. It's not as bright white as it was. It's more pink now and an area that seemed a bit raw, appears as if it might be growing new skin. I haven't been back to the dr. so I don't know definitively if its better, but since I'm very aware of the size, shape and color feel good about saying it appears to be getting better. Alka V-6 is made from silicon, a mineral. You mix the concentrate in a gallon of water and drink it 2ounces in AM/PM on empty stomach. Tastes like anchovies. Can be mixed in white grapejuice to alleviate the taste. The folks at Orizon are very kind and are thrilled to be seeing such great results from this. Also other cancers are responding well to it. It's so cheap $28/bottle. Hopefully, this will help all of us. |
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Coryad
USA
1 Posts |
Posted - 01/28/2013 : 19:30:33
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Hello!
I realize this is an older thread but I too was diagnosed with vulvar scc in 2009. I had 8 weeks of radiation/6 chemo treatments. To be blunt it sucked and not to share TMI  or be graphic but my lady area looks and feels like ground meat. I recently found another little bump and I'm pretty sure it's scc again. I feel I'm much wiser this time around and I refuse to be nuked or poisoned again. With that said I have an appt with my oncologist (I still must see him as I'm only 3 years out) on March 1 where I would assume he'll do a biopsy. I would really REALLY prefer to use a topical but I'm afraid it would be a bit rough in this delicate place. I think surgery would be an option as it's a tiny bump and it's not near anything "vital" if you know what I mean.
Has anyone used a topical in this area?
Have you had success?
Pain on the 1-10 scale?
How to you keep a bandaid (or similar)on in this area?
Thoughts on laser?
Thank you for any insight 
Cory |
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Liv
USA
4 Posts |
Posted - 10/05/2013 : 16:03:20
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Coryad
What was your outcome? |
Edited by - Liv on 10/05/2013 16:40:10 |
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Liv
USA
4 Posts |
Posted - 10/05/2013 : 16:05:50
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Coryad
I was recently diagnosed with vulvar scc, they want to do surgery and possibly remove my lymph nodes? I am two days in curaderm not sure what to expect due to the area. What way did you go? |
Edited by - Liv on 10/05/2013 16:06:27 |
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Liv
USA
4 Posts |
Posted - 10/05/2013 : 16:12:06
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quote:
Originally posted by simple_me
Dan, Thank you. I am very appreciative of your input. I needed some guidance of some things to choose from, because of exactly what you said--it is a sensitive area. And while it seems people get good results from bloodroot, it seems that should be my very last resort, as that may be too harsh for my particular area.
After poring through a lot of the information here (which by the way, I am so grateful for the very detailed info here!) I was thinking of Curaderm, but I can't find where to purchase it. Is this something I need to get a script from my doc for, or am I just not looking in the right places?
Thanks so much!
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Liv
USA
4 Posts |
Posted - 10/05/2013 : 16:19:41
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| Simple me did curaderm work for you? I hope it did. I just started two days ago. Please message back soon! |
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ankefyamj
USA
1 Posts |
Posted - 02/06/2014 : 22:49:52
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Vulvar cancer is a relatively rare diagnosis, representing about 5% of all gynecologic cancers, and only about 1% of all female cancers in general. There are about 3,500 new cases reported annually in the US and approximately 900 death a year attributed to this disease.
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anbuklagin
USA
1 Posts |
Posted - 02/25/2014 : 01:36:23
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Vulvar Cancer
