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uncle paul
South Africa
14 Posts |
 Posted - 05/21/2011 : 03:45:05
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Hi Maraika,
Wow 28-days you are a hero! I wanted to wave the white flag at 15-days but stuck with it to the prescribed 21-days. The last 10-days was hell - I felt almost suicidal. However, having been cleared by the Derm, last week I am ulta-positive about the efficacy of the Efudex treatment. Like you in OZ, the South African sun is near vertical in mid-summer and with our cool Cape Town SE wind it is so easy to get roasted! Henceforth it's big hats, lots of sun block and a re-visit to the Derm this time next year. Well done YOU!
Kind regards,
Uncle Paul |
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Maraika
Australia
3 Posts |
Posted - 05/21/2011 : 06:05:06
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Thank you soooo much. I don't feel brave. Have felt like crying quite a few times but knew that salty tears would hurt my face more. I have had small bouts of Depression on and off during but remember how thankful I am not to have anything more serious. Specialist said no need to come back unless I had a problem. Everyone has a different reaction. But most of them quite painful. One of the other members asked about the safety of ice packs. I would be better to use cool packs rather than ice as it may possibly damage already compromised cells. I had to use the cream twice a day for 2 days then once a day till 4 weeks. Would rather have had twice a day for 14 days and have it over with. I also suggest changing pillow slips every day as even a small amount of the cream on the slip can affect delicate tissue, eyelids, corners of ears or nose.
I was told not to use any moisturizer during the treatment, nor makeup, and not to go into the sun. I have to wait a couple of days after the last day before using any skin care and it will feel like bliss. Another tip is to avoid rubbing your nose as any cream that may come into contact with your hand and your nostril will make the inside very dry. I used lots of paw paw ointment for that. Thanks for all the encouraging messages in this group. |
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uncle paul
South Africa
14 Posts |
Posted - 05/21/2011 : 10:50:49
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Hi Maraika, Yep you sound as if you suffered as I did but for longer. My pharmacist, who also had to suffer as we did , recoomended TRAUMEEL during the recovery period. It is a German cream made by HEEL, so I guess that it's available in OZ. My Derm said that it was just fine to use Traumeel. The question of using a moisturizing cream during the treatment seems to have a bit of a question mark over it. I was tempted to use it, but decided against against using it because I couldn't face the possibility of it impairing the action of the Efudex. As I have told others, use Efudix twice a day for 21-days, keep out of the sun, wash your hands after applying the cream and then grit your teeth and pray for day 21. I have to say now my face has never looked better and my skin is as smooth as the proverbial baby's bottom! Good luck with the recovery period - I was looking pretty normal after 2-weeks.
Good luck,
Uncle Paul |
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Longdrop
Papua New Guinea
18 Posts |
Posted - 05/22/2011 : 01:42:06
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Hi Maraika and Uncle Paul and the poorguy using effudex on his lip. Keep with it Maraika! I stopped a month ago and my forehead, which had thirty of the little beasts, is now quite clear, fresh and soft. On the bright side it has also lost quite a few wrinkles!
Someone earlier suggested that the Effudex does not affect healthy cells. This is not quite true apparently. The active ingredient, fluorouracil, is an old cytotoxic (cell killing)chemotherapy drug (c1956?) and works by interrupting RNA-DNA cell synthesis. It affects cancer cells first as they are replicating fastest but would eventually start to affect the healthy ones, which is why we get quite short lengths of treatment. My doctor says he has read of treatment lengths up to 11 weeks. Agony!
All the best to you all and God bless the person who set up this site! |
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adm
Australia
2 Posts |
Posted - 05/22/2011 : 05:42:02
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I recently completed 21 days (2 applications per day) of Efudex treatment on my face and it was very uncomfortable and unsightly to say the least. After 2 weeks it started to burn and I was very embarrassed to show my face in public. I returned to my dermatologist for a check up and he told me I had a severe reaction and that I could stop the treatment. It took another 3 weeks before my skin fully recovered, including peeling, and they were among the worst days of my life. I wish I had prepared better and known in advance what to expect, I would have stocked food so that I didn't have to go out shopping.
One month later my skin is still pink/red in patches but I hope it is not permanent scarring. Other than that it is very smooth and my AKs (including all the ones I never realized I had) seem to have gone. I think I will apply the cream again to my face in another year or so to really get on top of it all.
Based on my experience here is my advice:
prepare for 3 - 4 weeks of isolation and stock up on essential items including food so you can just chill out at home.
have some good books on hand and an internet connection.
have your family visit you and make regular phone calls so that you dont get too depressed.
don't apply moisturizers or makeup during treatment.
use water only to wet the face and gently blow dry after.
don't touch scratch the skin as your fingers/nails have a lot of bacteria on them.
if itching is too hard to resist, use a tissue to dab the spot but dont scratch or rub with fingers.
after crusting/scabbing has healed use aloe vera or mebo cream to soothe the skin and aid the healing process.
think positive and remember it is temporary - it will get better! |
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adm
Australia
2 Posts |
Posted - 05/22/2011 : 05:57:58
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I forget to mention that MEBO (Moist Exposed Burn Ointment- Contains
Beta-sitosterol 0.25%, Sesame oil 92%, Beeswax 7.75%)cream is the very best ointment for healing burns and helping the skin heal quickly. It is based on sesame oil and comes from China. By Supporting Stem cell regeneration it also helps to minimise scarring. In addition, it helps cool the affected skin and has a soothing effect.
I had an excellent dermatologist (trained in US) at Bumrungrad hospital in Bangkok, Thailand recommend it to me after I had erbium laser treatment there a couple of years ago. Apply it liberally as much as you want and don't use water to wash it off until skin is healed - it's magic! Seems like doctors/dermatologists here don't know about it. |
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Cheeno
Australia
4 Posts |
Posted - 05/23/2011 : 08:59:58
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| I am wondering if anyone else is using Efudex the way I have been told to? Twice a day but for only two days a week and continue until the redness stops? I am into my 3rd week and so far have only had a reasonably minor reaction. I am using it on my nose and several spots on my cheeks and forehead |
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Nelson
Australia
1 Posts |
Posted - 05/25/2011 : 01:48:43
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I'm amazed that this string has lasted all this time, but then I shouldnt be - it is cancer we are talking about after all. My skin specialist has just recommended Efudex for a scc on my cheek (which has had a biopsy) but he reckons they didnt get it all.
After reading all of the posts in this forum I will NEVER use Efudex. I have, however, found a fabulous treatment called 'The Black Salve'. I applied this salve to a small skin cancer on my nose and within 2 weeks it had totally attacked the cancer, turned into a little scab and fell of leaving a small indentation which I am told will self-heal and fill in.
You can read all about the magical ointment here www.blacksalve.com.au
I will NEVER use Efudex or another cream they prescribe called Adlara. This Black Salve is amazing. I am now going to apply it to the site of the scc biopsy and see what happens. Stay tuned. |
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Longdrop
Papua New Guinea
18 Posts |
Posted - 05/25/2011 : 02:34:45
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Hi Nelson. I'd be very cautious about using Blacksalve or any other escharotic. If you search for it on Wikipedia there is a pretty damning article as there also is on the NZ Dermatology site at http://www.dermnet.org.nz/treatments/escharotics.html
The alternative treatment you are referring to is Aldara, which is a bit more fiddly to use than Efudex and should only be used on small areas and not open lesions I understand.
Sorry to hear a biopsy did not remove your SCC but then again the purpose of the biopsy is to determine the nature of the growth not remove it. I have however had a tiny SCC removed from my scalp by a biopsy procedure and confirmed by another biopsy of the site. |
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Maraika
Australia
3 Posts |
Posted - 06/04/2011 : 00:49:37
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| 2 weeks after 28 day treatment using Efudex. At the end of 28 days my face was burning and very, very painful. I was told not to use anything on my skin till I saw the specialist 4 days later. He said I had severe reaction and that the worse the reaction the better the end result. I was to use a topical hydro cortisone - for 7 days only. Then to go onto a good safe moisturizer. The redness would last for several more weeks, possible up to 6 weeks. It felt like bliss to not have the scabbing and cracking. Now 2 weeks on I have some very thick scabs in patches and one bad one top of cheek bone where I lost the scab during my sleep and it bled. I can see clear, clean patches where my skin feels smooth. I am starting to feel a little better about going out in public soon. I expect that another 2 weeks will make all the difference although many times I have had my doubts. It could have been a lot worse!! |
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deruo
Canada
21 Posts |
Posted - 06/16/2011 : 08:43:38
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Hi everyone, new member here. I'm glad I came across this site.
My derm prescribed me Efudex 5% and I had no idea of what I was getting until I picked it up and Googled it. Now I'm freaking out! Chemo? He made no mention of some of the stuff I'm reading and photos I'm seeing. He said this was an alternative to the nitrogen burnings, twice a day for a month.
I work with the public everyday so I don't know how thats going to work. I don't know if I can do it. (A good opportunity to educate people maybe....)
I suppose I'm fortunate that i haven't had any surgeries yet, and we're doing this to get rid of pre-cancerous nasties.
Unfortunately, getting another appointment quickly with him to ask questions isn't very easy. So I'm debating about whether and when to start this. It seems like everyone's experience is a little different, depending on the level of damage to their skin.
I look forward to reading more here and will contribute once I start - in the meantime I'll just curse "the Coppertone Tan" we were chasing back when were younger. |
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FlaLadyB
USA
12 Posts |
Posted - 07/20/2011 : 16:52:41
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I am new at that this too. Just joined and posted wrong, but.
Dr. just prescribed Efudex. I work with the public too, I'm a Realtor, how does the Dr expect me to live and work while using this? It's not going to happen after seeing the photos. I dont have the money to seclude myself for 4-6 weeks. How did you people handle this? |
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Longdrop
Papua New Guinea
18 Posts |
Posted - 07/20/2011 : 19:18:37
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| HI FlaLadyB. The last two weeks of treatment and the first two weeks after are the worst but I kept working all through. People were generally very sympathetic and kept telling me it was getting better. The alternatives of surgery and nitrogen burning are both more expensive and disfiguring (hugely so in the case of surgery). I wish I had done Efudex earlier and am very happy with the result - the furrows on my 60 year lod forehead have effectively disappeared! |
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uncle paul
South Africa
14 Posts |
Posted - 07/21/2011 : 00:28:38
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| Hi FlatLadyB - I totally agree with the comments from LongDrop - go for it - the alternatives are ghastly. Just wear a big hat and brave it out. Just about everybody I met were very sympathetic and some even went scuttling off to their docs to get themselves checked out. So - grit your teeth and you will emerge looking like a new person. In fact on an overseas visit, some 2-months after the treatment, I got many comments on how fantastically fit and youthful I looked. |
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FlaLadyB
USA
12 Posts |
Posted - 07/21/2011 : 10:52:16
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but how am I going to work with my face looking like raw hamburger meat? I'm single too and that makes it even harder. I wouldnt be able to go any where!
I can handle doing my chest and lower arms, but my face? |
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uncle paul
South Africa
14 Posts |
Posted - 07/21/2011 : 14:29:23
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| Hi FlaLadyB, As I said before the majority of people were most sympathetic to my condition and provided that you wear a big hat you can get by. It might even boost your sales! Remember it's not forever, whereas if you have to undergo surgery then it could be permanently disfiguring. Possibly high summer is not the best time to go about taking the Efudex cure. So maybe wait a couple of months until the sun is less strong. If you have some vacation due to you, then start the week before and then hide away for a couple of weeks, if you feel that you must do so. Therafter you will be on the mend. My own recovery was very swift once I stopped the Efudex applications and started using a soothing balm. However, believe me, the end really does justify the means! You will look like a film star within 6-weeks! |
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FlaLadyB
USA
12 Posts |
Posted - 07/21/2011 : 14:34:43
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I dont have vacation. I don't have 6 weeks to look like raw hamburger.. I can't hide away. I MUST work. Its only me and the bills. Wearing a hat just wont get it.. its my face, not my head.
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deruo
Canada
21 Posts |
Posted - 07/21/2011 : 14:45:40
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Flalady, like you I am a Realtor and also had qualms about working with clients while using Efudex. Although my dermatologist doesn't seem to think that it'll be that bad, I'm not convinced. We'll see once I start.
Either way, you have two choices. Do nothing and take the risk of having to have surgery or developing melanoma, or doing the thing with Efudex and know that you're reducing the chances of getting skin cancer in the future.
My dermo gave me the go ahead to do the treatment in the fall, when the sun isn't so strong, and I can take a week or so to work at home and maybe reduce the amount of time I have to spend with clients. Those that see me will ask and I will tell them what is going on.
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FlaLadyB
USA
12 Posts |
Posted - 07/21/2011 : 14:55:57
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well me being in Florida doesnt help
My alternative is to do the Photodynamic Therapy but I haven't seen much said about it on here. Seems like it would be less envasive.
I know doing the efudex would be best, but after reading and seeing all the things that happen to people, its really hard to even think about doing it unless I can disappear for a few weeks and hide in the dark.
I know.enough whining.. still
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Cheeno
Australia
4 Posts |
Posted - 07/21/2011 : 19:51:34
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| I am currently using Efudex and am very happy with the results BUT my doctor has a different approach. I am using it twice a day but for only two days a week and will continue for several weeks. I have finished a 7 week session, had a 2 week break to see how it's gone and am now back on another 7 - 8 week session. I certainly have a reaction and the areas become red but have had no major, severe reaction so have been able to continue going out etc. Perhaps my initial problem wasn't as severe as others but I have been having various other treatments for several years with good results but the problem areas kept returning after a few years.My doctor has said he doesn't need to subject me to the intense severe treatment - he believes he'll get the same results by treating over a longer period. He is highly respected in his field. Like all forum posts this is my personal experience that is working for me and may not be appropriate for others but I have posted this to show that there is another way to use this treatment. I am very happy with the results but who knows what will be happening next year! |
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Longdrop
Papua New Guinea
18 Posts |
Posted - 07/21/2011 : 20:03:27
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| FlaLady, there is some evidence that mild sun exposure improves treatment efficacy. The important thing though is to follow the regime the doc prescribes and don't stop too soon. It is not so bad and people ARE very sympathetic. My son came for a visit and said I looked years younger! |
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JennT
2 Posts |
Posted - 07/25/2011 : 11:07:43
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Has anyone had an issue of squamous cell on the face being mis-diagnosed with Lupus of the skin? Three biopsys in different areas came back as either actinic keratosis or squamous. I went for a second opinoin on treatment. The Dr. was convinced it was not cancerous so I asked him to take yet another biopsy. The pathology came back as lupus.
Am now on my 7th day of treatment (for the 2nd time) with Efudex and the spot diagnosed as Lupus is reacting the same as the AK/SCC spots. Just curious if anyone else has experinced the same thing. |
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SherylWA
Australia
2 Posts |
Posted - 08/16/2011 : 00:42:59
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I am on day 2 of Efudex for my face, arms and chest. I am so glad I stumbled onto this site. Reading your comments and hints is extremely helpful, and now I know what I'm REALLY in for! 
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uncle paul
South Africa
14 Posts |
Posted - 08/16/2011 : 04:00:10
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| Hi SherylWA, I wish you luck with the treatment - as you may have gathered from the site it gets a bit uncomfortable especially towards the end but stick with it and you will emerge feeling better and looking much better. I would not like to have repeat the process but I would do so without hesitation, if required, knowing that it is a very temporary treatmentthat that really works. I would be much happier going out than I was originally and meeting people. I got a lot of sympathy and encouragement when I did so and even got "special prices" on some of my purchases from those that felt sorry for me! So, when and if it gets a bit yukkie for you, just grit your teeth and pray for day 21! You will emerge, a couple of weeks thereafter, looking like a film star! |
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FlaLadyB
USA
12 Posts |
Posted - 08/16/2011 : 10:05:03
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I have a question about the cost of efudex. Has anyone found a reputable less expensive place to order it? The price here is $350 a tube with no insurance. The generic is still $250. My Dr. says some of his patients found it for $150. I will have to go hunting once I decide to do it. Not ready yet and its too hot in Fla.
Also, do you use one tube, or more? |
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JennT
2 Posts |
Posted - 08/16/2011 : 16:58:53
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quote:
Originally posted by FlaLadyB
I have a question about the cost of efudex. Has anyone found a reputable less expensive place to order it? The price here is $350 a tube with no insurance. The generic is still $250. My Dr. says some of his patients found it for $150. I will have to go hunting once I decide to do it. Not ready yet and its too hot in Fla.
Also, do you use one tube, or more?
You can contact the manufacturer of the product. In some cases they can give you discounts or tell you the best place to purchase at a discounted rate. Chain's such as WalMart, Kroger, Target, etc have great generic discount programs and may be able to offer assistance. I am using the generic this time and is working the same as the brand name.
I am using twice daily on my face and chest for 6 weeks. Yesterday I started my 4th week and opened my 2nd tube. |
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SherylWA
Australia
2 Posts |
Posted - 08/16/2011 : 22:06:59
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Thank you so much Uncle Paul. Now on day 3 and nothing much has happened. My Dr didn't go into much detail on this treatment, so just by reading the comments on this site I am now better informed on the issues that will arise. I have taken 5 weeks off work so hopefully this will all be over by then.
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Gideonwolf
USA
3 Posts |
Posted - 08/17/2011 : 15:13:59
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I just want to say thanks to all who posted here
I live in Denver and have Squamos cell carcenoma.
I started Efudex treatment 3 weeks ago and found this site at that time.
the first week was easy, the second the itching started and third was about the same except for when applying the Efudex...tough to put it on during that 3rd week. Twice a day.
Finished last night, and now face is peeeling, blotchy, and red..
Anyone know if the red should be uniform across the whole face?
How long for the healing process?
Interesting that my nose was solid red and not my whole forhead |
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Longdrop
Papua New Guinea
18 Posts |
Posted - 08/17/2011 : 18:44:49
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| Gideonwolf, I understand that the active ingredient of Efudex is cell poison (cytotoxic) which is selectively taken up by the cells duplicating themselves the fastest (ie the cancerous and pre-cancerous ones). The amount of redness and blotches depends on how many precancerous cells you had and how long you apply the cream. In my case the blotches were mostly on my forehead and left hand side. I also found the blotches went down quite quickly and were barely visible after three weeks. I used a mild cortisone cream for the first week and Dermaveen moisturiser afterwards. Good luck and thanks again to Dan the site designer and host (I think) |
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Longdrop
Papua New Guinea
18 Posts |
Posted - 08/17/2011 : 18:56:53
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| Hi again FlatladyB. I can't let your post go by! Efudex at $350 a tube? In Australia it cost me about $15 with a doctor's prescription. The active ingredient of Efudex (Fluorouracil) is one of the oldest chemotherapy drugs and was patented in the 50's so any patents have long expired surely. The US health system really needs a shake up if Efudex at $350 is an outcome! |
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Gideonwolf
USA
3 Posts |
Posted - 08/17/2011 : 19:09:56
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| I went through the same thing - not much happened the first 5 or 6 days - most of it started up the second week |
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Irishgirl
USA
0 Posts |
Posted - 08/18/2011 : 18:52:58
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| Hello, I am on Day One of 6 to 8 weeks Efudex treatment for "superficial" SCC on my chest. It is a samll spot and i think i can handle the ugly blistering etc as I just had about 30 AK frozen off of my face, hands and arms and I still look awful. However, I am totally freaked out about what this stuff will do internally to my healthy cells. I have read really scary stuff about Aldara and wonder how similar it is to Efudex. Doesn't 6 to 8 weeks seem long for something the derm said was "very early" and superficial? Has anyone tried "Perrin's Cream" for AK's or SCC with any success? Is it a type of Black Salve? Thank you so much for any insight. I know that this will probably not be the last diagnosis of BCC or SCC due to the number of AKs but I would like to stick to the natural route as I freak out taking an asprin. |
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sldavid
USA
2 Posts |
Posted - 10/14/2011 : 21:10:45
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For those of you who are new to Efudex I would highly recommend reading the insert which comes with the cream. I have been using this cream for several years on different areas of my face. Have learned a few tricks in the process. I try to focus on one small area at a time. When it starts to look too unsightly, I cover it with a bandage (perfectly acceptable according to the insert) when I need to be out it public. Make sure the bandage fits loosely over the area avoiding the adhesive sticking to the wound. Since I focus on one area at a time I sleep on the other side of my face to avoid bleeding which avoids prolonging the healing time.
I have found thru experience that the wound will tell me when I can stop applying the ointment. When a scab forms, cease the Efudex.
Withing 2-3 weeks the scab will start to drop from the area. After the scab is gone apply Aquaphor (OTC) to the affected area to promote healing.
I never use any product other than Efudex on the spot I am treating once I have begun the process. While it may be uncomfortable during the 3-6 weeks of dealing with ak or bcc I am so grateful to have this alternative to surgery. |
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gebgeroboys
Philippines
2 Posts |
Posted - 10/15/2011 : 03:17:22
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| Uncle Paul with the information you give your positivity is great. and also the rest of you who give information. I have question my Derm told me to talk the Efudex for 3 to 4 weeks how do you know if you should stop at 3 weeks. Im an American in the Philippines 42 retired early so its easy for me to take the medicine. I'm on day 15 and it is red itchy and burning. |
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gebgeroboys
Philippines
2 Posts |
Posted - 10/15/2011 : 03:31:09
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Hello Uncle Paul your information is very positive. im on day 15 and it is red itchy and burning the doctor said 3 weeks or 4 weeks how do I know if i should stop at 3 weeks.quote:
Originally posted by uncle paul
Hi Sparkhi,
I'm afraid to say it has got to get worse before it gets better. As I said to Longdrop my face looked like a raw Hamburger and later on it looked worse becaued of the flaking skin. However, recovery is pretty quick once you stop. The day after I stopped I used a homeopathic ointment called "Traumeel" (German) it is supposedly for sports injuries. It was recommended by my pharmacist, who also had to take a course of Efudix himself, he said that it worked well for him. This dude actually endured 6-weeks of Efudix - my absolute max was 21-days. FYI day 15 was the worst for me, at that point I thought that I would be scarred for life. However, once all the bits fall off you emerge with a face looking very smooth and fresh. I had a haircut yesterday and, as I said before, I looked 10-years younger this morning. Give me a shout when and if you think you have reached the limit. Good luck!
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uncle paul
South Africa
14 Posts |
Posted - 10/15/2011 : 06:20:49
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Hi Gebgeroboys,
Thanks your kind comments re the treatment. I cannot advise you on the 3-week or 4-week options because I am not qualified to do so. My Derm told me 3-weeks applying Efudex twice daily. By the time day 20 had arrived I was counting the hours to my last application - at that stage I don't think that I could have gone on any further. However, I did apply a soothing cream called Traumeel thereafter and a week or so later I started to look and feel much better. I guess if you have enough Efudex cream left and can handle another week after day 21 then that's probably the way to go. The bottom line is that the treatment really does work and I am now 6-months down the line without a blemish on the previously affected parts of my face. I have to go back to the Derm next year April but would have no hesitation whatsoever to using Efudex again if I had to. Good luck with the next week or so - it's not pleasant but it's nice to know that it is only a temporary discomfort - so go for it! |
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BigD
Australia
8 Posts |
Posted - 10/15/2011 : 22:33:31
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| For all those using efudex please have a look at the petty spurge thread, a natural plant solution with far superior results. I have used both and will only use Petty Spurge from now on |
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gebgeroboys
Philippines
2 Posts |
Posted - 10/19/2011 : 05:51:10
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I talk to my Derm she said i can stop after 21 days I have 3 more days but it burns and itches and hurts so bad i want to stop so annoyingits driving me crazy is it suppose to feel like this.quote:
Originally posted by uncle paul
Hi Gebgeroboys,
Thanks your kind comments re the treatment. I cannot advise you on the 3-week or 4-week options because I am not qualified to do so. My Derm told me 3-weeks applying Efudex twice daily. By the time day 20 had arrived I was counting the hours to my last application - at that stage I don't think that I could have gone on any further. However, I did apply a soothing cream called Traumeel thereafter and a week or so later I started to look and feel much better. I guess if you have enough Efudex cream left and can handle another week after day 21 then that's probably the way to go. The bottom line is that the treatment really does work and I am now 6-months down the line without a blemish on the previously affected parts of my face. I have to go back to the Derm next year April but would have no hesitation whatsoever to using Efudex again if I had to. Good luck with the next week or so - it's not pleasant but it's nice to know that it is only a temporary discomfort - so go for it!
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uncle paul
South Africa
14 Posts |
Posted - 10/19/2011 : 10:40:19
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Hi Gebgeroboys,
Yup, all the way! That's why I said that I could not hang in after day 21! Having come so far it would be inadvisable to chuck just when the end is in sight. If you did so you might later regret not having completed the treatment. So all I can say is just grit your teeth and pray for the dawn of day 21! Recovery is pretty quick thereafter and just not having to put on the Edufex is a relief in itself. Good luck my friend, just comfort yourself that it just gets better and better once the treatment is complete. |
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gebgeroboys
Philippines
2 Posts |
Posted - 10/21/2011 : 23:52:37
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I made it 21 days today was the last time I put it on Efudex so happy. What will happen next will it peel or scab will my face still hurt burn and itch how long do you think. Thank you for all the info your very kind. quote:
Originally posted by uncle paul
Hi Gebgeroboys,
Yup, all the way! That's why I said that I could not hang in after day 21! Having come so far it would be inadvisable to chuck just when the end is in sight. If you did so you might later regret not having completed the treatment. So all I can say is just grit your teeth and pray for the dawn of day 21! Recovery is pretty quick thereafter and just not having to put on the Edufex is a relief in itself. Good luck my friend, just comfort yourself that it just gets better and better once the treatment is complete.
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uncle paul
South Africa
14 Posts |
Posted - 10/22/2011 : 00:43:10
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Hi Gebgeroboys,
Well done, that's showing true grit! Well, first of all just think that you will not have to put on Efudex again - ever! (hopefully) I used a soothing ointment Traumeel by HEEL German manufacturer - it's actually designed for sports injuries. It was suggested by my pharmacist, who had himself taken a 6-week course of Efudex and reckoned that it worked well for him. However, there are alternatives suggested on this site so scroll down and see what you can get locallyu. After about a week you will start to notice good changes and the discomfort will fade rapidly. The great thing to remember is that you get a bit better every day. After about 3-weeks or so you will start to look and feel like a film star. Oh yes, don't forget the SPF50+ sunblock and the big hat when out in the sun. |
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deruo
Canada
21 Posts |
Posted - 10/24/2011 : 19:48:01
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Hi everyone,
I wrote back in the early summer. I just started my Efudex treatment yesterday on my scalp and forehead (for a month) with the rest of my face to start next week (for 3 weeks).
So far nothing out of the ordinary but some itching.... but I know it's only two days so far ;-)
I have an appointment scheduled with my Dermo on November 1st when I hope to get a handful of prescriptions for Aquaphor and some anti-itch cream.
I don't know how work is going to go but not much time to worry. It looks like I may be moving house during the month of November so I'll have plenty to keep me busy!
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sldavid
USA
2 Posts |
Posted - 10/24/2011 : 20:24:13
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| The good news is that Aquaphor is sold over the counter and therefore no prescription is needed. I think you will find the itching dissapears once the scab is gone. Having a loose fitting bandage on the area also allows you to do a little touching of the wound when the itching starts driving you crazy! |
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deruo
Canada
21 Posts |
Posted - 10/24/2011 : 21:09:18
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I'm in Canada and asked the pharmacist the other day about it.
She said I needed a prescription for it, but that it seemed (according to her computer) to be much like Vaseline. (?!)
It's odd the differences between countries. My favorite back pain meds are only by prescription in the US but off the shelf here. A half decent corticosteriod creme over 1% and you need a prescription for it.
Sometimes it doesn't make sense. |
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FlaLadyB
USA
12 Posts |
Posted - 10/25/2011 : 08:11:32
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| It also doesnt make sense when Efudex costs about $300 a tube here (without insurance) and someone else can get it for $25... |
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sldavid
USA
2 Posts |
Posted - 10/25/2011 : 10:11:47
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| The Aquaphor that I use is made by Eucerin which makes several ointments sold over the counter in the US. You might want to ask your pharmacist if this is the same product she is referring to. It does feel similar to vaseline so you can do no harm in using that first to see if you get relief from the skin irritation. |
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Longdrop
Papua New Guinea
18 Posts |
Posted - 10/25/2011 : 19:10:40
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| The active ingredient of Aquaphor is petrolatum. As I understand it this is also an ingredient of Vaseline and basically seals the area so the skin can heal itself. I used a mild cortisone cream (1%) for a week and then Dermaveen moisturiser and was very happy with the result. |
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JackRussell
USA
18 Posts |
Posted - 10/28/2011 : 14:08:46
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| I DID EFUDEX !! I have to put my 2 cents in - I was 47 and requested the Dermatologist prescribe Efudex. She was amazed because no one had ever volunteered to do this. I'm fare skin, blonde and male. I applied it twice per day for 30 days. In retrospect I wish I did 6 weeks. I had a great outcome. It's been over 5 years now and I have a few freckles that have popped up and some lines, but still look better than I did 5 years ago before Efudex, which in all honesty wasn't that bad to begin with. I had some flaky (what was called) basal cell on the bridge of my nose on which a previous 4 attempts to freeze failed. Since Efudex, to this day, it has not returned. Sure it was a little rough toughing out the 30 days but take your bleeping medicine and get the bleeping job done. Because I did this I might just never know the melanoma that never killed me. And actually, I had melanoma on the neck. During Efudex it lit up. A few years later a freckle persisted at this spot which the Dr's told me was nothing, but I trusted what Efudex was trying to tell me two years earlier and demanded it be biopsied. Long story short it was all the way to the deepest layers of skin. I narrowly escaped. If I had hit it with Efudex for 60 days I bet you a million bucks I would have killed it and never known the difference. Efudex is a godsend. What a gift. See it as this and be thankful we have been given such a marvelous drug. The option of not having this drug ain't so great. |
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deruo
Canada
21 Posts |
Posted - 10/31/2011 : 22:18:38
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I just thought I'd pop in with an update as I just started week 2 of treatment.
There were a couple of days last week where I was nauseous. I'm not sure if thats Efudex related or maybe a flu bug doing around.
My forehead looks very angry (but for some reason, looks at its' worst in the morning and seems to calm down during the day.
The interesting thing is that I can see where my hairline used to be (so I'm thinking maybe most of the damage was done back when I still had some hair on my head) The top of my head/scalp hasn't been as bad as I expected, despite walking around with a shaved head for 20 years.
I'm on day 3 of doing the rest of my face and haven't seen any spots light up yet, but I know they're there. I see a spot or two on my ears as well.
The pain is tolerable so far... or maybe I'm just used to it. Again, it seems to be the worst in the morning when you start moving the muscles in your forehead (I should have done Botox first! LOL) . Gradually being less sore as the day goes on. I'm hanging in there!
I started a blog documenting my progress but haven't been keeping up with it, for a number of reasons. Perhaps I will complete it once I'm finished treatment.
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kidmore
Canada
0 Posts |
Posted - 11/02/2011 : 16:59:22
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| I am new on this forum (67 yrs-old). My dermatologist just prescribed Efudex cream mixed with 1%hydrocortisone cream in equal parts; to apply on lesions once daily, at bedtime, for 1 month. Has any one heard of that? The doctor warned me of the unpleasant effects. Having searched the internet and seen the pictures of very raw-looking foreheads or faces, I decided, as my first experience with this medication, that I'll start by applying the cream on a few single spots at a time. I'm on my day 2. I'm a bit depressed, as I didn't realize the diagnosis for which I was prescribed this cream related to skin cancer. To contribute to my feeling down is that I've also stopped drinking coffee as I want to cut down on all foods that are stimulants chocolate, sugar, etc.. to help my skin... |
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deruo
Canada
21 Posts |
Posted - 11/03/2011 : 09:49:12
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Hello and welcome Kidmore.
So your Dr. never told you about it being chemo in a tube either. This seems to be a common occurrence. Mine didn't either.
Yes it's depressing, but the good thing is you're being proactive about it. I found out I was being treated for skin cancer in the Costco parking lot after Googling this stuff he prescribed.
I have heard of the once daily application routine, but it was usually for a longer period of time.
I'm not a Dr. but if you enjoy having a cup of coffee or a bit of chocolate, and it'll make you feel better, I don't see the harm in that. Did your Doctor tell you not to eat/drink these things?
My Dr. made no mention of anything I should not be eating/drinking. I don't normally drink coffee, but I am these days.  |
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Longdrop
Papua New Guinea
18 Posts |
Posted - 11/03/2011 : 18:42:32
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Hi Deruo and Kidmore. Neither my dermatologist or my GP in Australia and PNG mentioned this was chemo either. Must be something they are taught at med school.
I am treating a spot on an ear that has been frozen unsuccessfully twice. Seems to be going well after two weeks.
As for sugar and coffee, I'd suggest giving up sucrose/sugar and especially fructose, or limiting them, as soon as you can. Coffee however is associated with reduced skin cancer (see thread on this site). Mercola.com has lots on both topics. Good luck and thanks again Dan. |
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kidmore
Canada
0 Posts |
Posted - 11/04/2011 : 16:12:53
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| Thank you Longdrop and Deruo for your response and also all the others, I find this forum helpful. I'm getting over my coffee craving: the trouble for me with coffee is that I like it with sugar. I prepared a series of questions to ask my dermatologist, one of them being: is there a relationship with the acnea rosacea (which is what I was supposed to have before) and my current diagnosis. Is cancer an acnea rosacea gone wrong? Or do I now have two conditions: the rosacea and the cancer? I'm resisting the cancer diagnosis since the dermatologist did not pronounce the word cancer. Also, shouldn't a biopsy be done before confirming skin cancer? Anyway, I'm proceeding with the daily application on 4 spots (tonite will be day 5), so far no visible changes. |
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deruo
Canada
21 Posts |
Posted - 11/04/2011 : 16:30:21
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It's quite possible that he's treating you for pre-cancerous spots called "actinic keratosis" or "solar keratosis". Do either of these terms sound familiar?
Either way, it took close to a week for my forehead to start getting its spots, and day 6 for my face to start showing spots, and thats with 2 applications daily.
For a while there I thought I got a bad batch of Efudex because nothing was happening. It is now! |
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kidmore
Canada
0 Posts |
Posted - 11/04/2011 : 17:17:15
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| yes, actinic keratosis is what it's said on the referral note from GP to dermatologist. |
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steellassie
USA
0 Posts |
Posted - 11/04/2011 : 20:16:12
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I am so grateful to have found this forum. Like many of you, I've gone thru various treatments up to and including Mohs surgery for squamous cell lesions. I will begin efudex & retin-a 2-Xs daily for 3 weeks at the end of the month. I know sun damage played a role in getting me to this place but I also wonder whether asbestos exposure from 30 yrs ago could have also figured in. I worked for 8yrs. as a blast furnace welder and wore company issued asbestos gloves. We also used asbestos coated welding rods back then. The squamous lesions started on the top of both hands and included the webbing between my fingers and skin up to the 2nd knuckle. Over time, they progressed up my arms to the elbow area. The large, men sized gloves completely covered my skin to this point. If anyone out there has seen or heard of any skin connection to asbestos exposure I'd appreciate hearing from you. Thank you again for developing this wonderful sharing site where we can all learn and benefit from the encouragement it provides.
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steellassie
USA
0 Posts |
Posted - 11/04/2011 : 20:46:29
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| Hello to all. I will be starting efudex & retin-a at the end of this month for lesions on my hands and arms. I know sun damage played a role in getting me to this point. I also have wondered whether asbestos exposure from 30 yrs ago as a welder could have also figured in. We wore company issued asbestos gloves back then and also welded with asbestos rods. The site of my squamous lesions began on both hands including the webbing between fingers and the skin up to the second knuckle. In time it progressed up to the elbow area. If anyone has info regarding asbestos and if it relates to skin cancer I'd appreciate hearing from you. Thank you for developing this wonderful site. |
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steellassie
USA
0 Posts |
Posted - 11/04/2011 : 21:42:12
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| Hello to all. I will be starting efudex & retin-a at the end of this month for lesions on my hands and arms. I know sun damage played a role in getting me to this point. I also have wondered whether asbestos exposure from 30 yrs ago as a welder could have also figured in. We wore company issued asbestos gloves back then and also welded with asbestos rods. The site of my squamous lesions began on both hands including the webbing between fingers and the skin up to the second knuckle. In time it progressed up to the elbow area. If anyone has info regarding asbestos and if it relates to skin cancer I'd appreciate hearing from you. Thank you for developing this wonderful site. |
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deruo
Canada
21 Posts |
Posted - 11/10/2011 : 15:54:05
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I'm on day 19 today.
I don't know if I can take another week of applying this stuff twice a day. My skin is raw and the pain in my forehead is unbelievable. Aquaphor helps, but you have to endure 2 hours of not having it on before you can apply it.
I finally found some Aquaphor here in Toronto (at Shoppers Drug Mart and apparently London Drugs in Canada also carries it.
My dermo told me to do 30 days on my forehead. But he also said that when I get blistering that I should quit - not necessarily wait until day 30. I've been doing Aquaphor and Tylenol but it's just not helping that much. I'm miserable and want to quit.
Getting an appointment with a dermatologist is almost impossible here. You either get one that tries to sell Botox or other treatments, or someone who is never available (like my guy) He only said he wanted to see me about 2 months after I finished treatment (Feb)
Any suggestions or hints on how to get through the next week to ten days? |
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deruo
Canada
21 Posts |
Posted - 11/10/2011 : 16:01:45
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Also, someone mentioned upthread about the various treatment times that we all seem to have been given, 2 weeks, 21 days, 30 days, 28 days. I looked and I never saw it addressed.
Does anyone know why the treatment times vary so much and is there a difference? |
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Longdrop
Papua New Guinea
18 Posts |
Posted - 11/10/2011 : 19:51:04
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| Hi Deruo. I don't know why the doctors recommend different treatment times but mine was 21 days and I quit on day 19 in consultation with my GP. I had had several BCC cut off my head, one Bowen's off my neck and one SCC. I also had several patches of keratoses on my face. The dermatologist did show me pictures of people undergoing the treatment, including one where he said the man had gone for too long. The picture showed his face almost entirely red if that helps. The Efudex literature I have see seems to suggest that for the face 21 days at twice a day is the common prescription. Hope that helps! |
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sldavid
USA
2 Posts |
Posted - 11/10/2011 : 20:29:55
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Hi Deruo,
I also think 19 days are enough. I waited until the scab had fallen off before applying the Aquaphor which was not easy but it felt sooooo good at that point to feel the healing benefits of the cream as my skin had become ultra sensitive. I just think different doctors have different ideas about the length of time to apply the Efudex. I really see no reason to continue applying the ointment if you are just putting it on top a scab as it is probably not penetrating down to the skin area. |
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deruo
Canada
21 Posts |
Posted - 11/15/2011 : 12:41:06
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Scabs? I haven't come across any of them yet. I did shed another layer or two of skin today in the shower. Actually, when I got out of the shower the first time, my entire face was grey, where the dead skin had soaked up water. I didn't want to leave it like that so back in I went and I gently exfoliated it off.
There are a few spots that have bled during the night or day and those have formed scabs of sorts, but they usually just wash off or disappear with the next treatment.
Longdrop you've got me worried about the guy with the red face. Yes, a good portion of mine is red, but there are still plenty of blotchy spots on my cheeks and temples.
I'm on day 24 for my forehead, and day 17 for the rest of my face. Was told 30 for forehead, 21 for the rest.
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sldavid
USA
2 Posts |
Posted - 11/15/2011 : 13:19:02
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| Maybe scab is not the correct terminology. I did have a hard crust form each time I used Efudex which took another 2-3 weeks to fall off after I ceased using the product. According to the insert this is normal and part of the healing process. |
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Longdrop
Papua New Guinea
18 Posts |
Posted - 11/15/2011 : 18:50:59
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| Sorry deruo, didn't mean to alarm you. I think that from the material the dermatologist showed me that blotchy is good but when the whole face is red and raw you need to stop and have probably gone on too long. By the sound of it you still have couple or three more days to go. If you don't do it properly there is the awful prospect of having to do it again! Good luck |
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JennT
2 Posts |
Posted - 11/16/2011 : 21:15:16
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| I am scheduled for the Mohs procedure on my face in a couple weeks to remove SCC on my face. I have treated it twice with efudex and it has come back each time, worse than it was before. Any advice on having the Mohs procedure? |
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Longdrop
Papua New Guinea
18 Posts |
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JackRussell
USA
18 Posts |
Posted - 11/20/2011 : 23:44:39
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TO JenT.
Actually, this is a response to everyone.
Efudex is no party. JenT, I guess that your earlier attempt with Efudex failed because you probably did it for only 21 days of less. There was a question earlier on this post about the varying durations in treatment. The varying duration I think is largely due to three reasons: 1) People can't take it and so the Dr cuts it short,2) Different treatment times for different cancer types, skin types and ages, and 3) I think many Dr's don't know what they are doing. Prior to doing Efudex I poured over all the studies on it. Minimum you need to go 28 days (face), two apply twice per day. If you are going after basil cell on the face then you must go 60 days. I know it's tough medicine but you are talking about pentance for years of damaging your skin. 60 days is nothing compared tot he 40 or mosr years of damage.
My girlfriend's Dr was going to remove basil cell from he cheek. A significant area would be cut and she would be scared. I got he a different Dr who thru my encouragement did Curac (eurafloricil - same stuff as Efudex). She applid it to the area for 60 days. It was a mess but you know what? She looks great today.
If you don't go long enough then It will come back some day. Get tough and just get it done. And don't forget your 50 block. |
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bobw
1 Posts |
Posted - 11/21/2011 : 04:33:12
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| I have a question. How much do you guys apply? I know people are going to say everyone is different etc, but there must be a general rule of thumb. Say someone was doing their whole face twice a day, how long would a 20 gram or 40 gram tube last? Or if deruo is reading this, how much are you using on your scalp etc. I'm currently in Mexico, where Efudix is about $35-$40 for a 20 gram tube (and yes, it's completely legit Valeant Pharmaceuticals) and was trying to figure out how much I would need for my scalp and face for 30 days. Based on everyone's experience, and possibly applying it on the heavy side if anything...how much do you go through? How long would a 20 gram tube last? |
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FlaLadyB
USA
12 Posts |
Posted - 11/21/2011 : 08:31:38
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If you are going to have Mohs surgery on your face ( I have had both sides of my nose done and both 4 layers deep ) make SURE you have a Dr who knows what he is doing. Mine were done so well you can't even tell. Others I have seen are not do good. I remember being told the biopsy was positive (after 2 years of spraying and having a dumb dermatologist)then going to 4 plastic surgeons who all told me they were going to cut my face and do what is called a flap and pull skin over - well, that would leave a perm scar and all I did was cry and say there HAD to be another way. Well, I found a Dr who did do what everyone else did and I stayed with him over 20 years JUST for skin cancers. Unfortuantely he no longer is in practice and I am trying out a new guy, after checking his credentials.
I now have a presp for efudex - does ANYONE know where you can find it cheaper than $300 a tube in the US?
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deruo
Canada
21 Posts |
Posted - 11/21/2011 : 11:26:58
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bobw - My first 40g tube lasted me about 3 weeks. I'm putting it on my scalp, forehead, rest of face, and a small spot on my shoulder, twice a day.
I think thats quite a bit of skin! I'm not sure if we're allowed to direct to other websites here but here goes: efudexed.blogspot.com . It's a blog I started, like others, in hopes of helping patients get an idea of what to expect. You can see my mug in all its' glory there. If the link gets removed, PM me and I'll send it to you that way.
It takes a couple of days to get the hang of it, the consistency in my first tube was much thicker than my second (which has a longer expiration date). I'm doing it to give everything a very thin layer. I didn't think my first tube was going to last until day 15 but I managed to squeeze enough out until day 21 or so.
My second tube expiration date is January 2013 and the consistency of the product is almost like a lotion. Goes on very easily.
Those prices in Mexico, although cheaper than the US, seem more expensive than Canada. My 40g tube at Costco here in Canada was just under 40.00 Canadian. There are a number of online pharmacies where you can buy "Canadian" drugs cheaper, and have them delivered to you in the US. You need a prescription but certainly cheaper than buying through US based pharmacies. For example, I found 1 online site where a 40g tube of Efudex was $79.00.
Charging $300.00 a tube for this stuff is criminal. |
Edited by - deruo on 11/21/2011 12:50:28 |
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deruo
Canada
21 Posts |
Posted - 11/21/2011 : 11:31:44
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| bobw - I should add that I've been shaving most days, or every second day, including my head. Usage increases somewhat dramatically if there's less smooth skin to work with. |
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bobw
1 Posts |
Posted - 11/21/2011 : 16:37:51
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| That blog is awesome...thanks. I can't believe you are able to shave with a razor. I usually do, but during this I will be buying an electric (I also shave my head). So when you apply, you rub it in or just cover the surface and let it absorb on it's own? |
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deruo
Canada
21 Posts |
Posted - 11/21/2011 : 17:25:30
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I use a triple bladed razor (not every day during this though) because on top of it all, I'm moving and can't find the electric ;-)
I read somewhere... I can't remember where... that shaving cream works well as a cleanser in a pinch.
I tried Noxema, which usually works extremely well for shaving, but found it stings as well.
Granted, its still not pleasant but as someone has already offered me money on the street, thinking I was homeless/down on my luck, I'd like to look as presentable as possible! LOL.
I rub the surface with Efudex, much like I would with sunscreen, (using much, much less though) and rub it in so that I can't see any white streak marks. I started using latex gloves but found them to be a hindrance. I use my fingers and make sure to wash them thoroughly afterwards. |
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aguisin
USA
0 Posts |
Posted - 12/01/2011 : 09:42:17
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| I am on day 6 following 17 days of Efudex on my face. I had no noticeable lesions or BCC, Like all, I had a tough experience with the pain and ugliness. My biggest concern now is whether the redness will ever clear up. I know that may seem irrational, but you know..... My whole face is still about as red as ever although the pain is virtually gone. I use OTC steroid cream followed by Aquaphor. Does anyone know how long it might take for the redness to clear up? |
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Topic |
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Efudex
