Skin Cancer Forum
Skin Cancer Forum
Home | Profile | Register | Active Topics | Active Polls | Members | Search | FAQ
Username:
Password:
Save Password
Forgot your Password?

 All Forums
 Skin Cancer Forums at Topicalinfo.org
 Skin disorders and general health topics
 cutaneous t-cell lymphoma
 New Topic  Reply to Topic
 Printer Friendly
Author Previous Topic Topic Next Topic  

Scared-Wife

2 Posts

Posted - 03/05/2012 :  10:46:28  Show Profile  Reply with Quote

1- Is taking any supplement to boost immune system will affect the effectiveness of the UV Therapy?

2- Anybody found any HTML Link about survival stories

3- Any link for natural remedies or treatment

4- Any link for any successful Clinic Trials for this rare cancer

I will appreciate any input and God bless,

Faith

dan

607 Posts

Posted - 03/05/2012 :  21:53:18  Show Profile  Reply with Quote
Hi Faith, here are a couple of links you may find helpful.

Lymphoma cause, prevention and treatment of lymphoma with herbs, vitamins, supplements, and natural diet options by Ray Sahelian, M.D. http://www.raysahelian.com/lymphoma.html mentions graviola, vitamin d, and indole-3-carbinol. Vitamin D seems helpful for any cancer and is possibly why UV treatment is effective.

Earth Clinic with Ted from Thailand is a good source for ideas. http://www.earthclinic.com/CURES/lymphoma.html

In addition to vitamin D, pancreatin enzymes, iodine, and astaxanthin seem to be helpful for most cancers.

Not exactly what you asked for but clinical trials can be found at http://clinicaltrials.gov/ct2/results?term=cutaneous+t-cell+lymphoma
Go to Top of Page

maurauderottawa

Canada
1 Posts

Posted - 09/01/2012 :  09:46:21  Show Profile  Reply with Quote
You do not say what stage or age your husband is at. LDL level is also a good indicator of outcome.

Look At http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2566300/

I have cutaneous T-cell Lymphoma and I am controlling it with vitamin D
(Three Years). There appears to be very little in the literature about this topic as I downloaded more than a dozen mainline research papers on prognosis of this disease without them even addressing it.

It is a little scarey as the 5 year survival rate is only about 75% at stage 1B. (Me against the world or what). That is about 14 times as dangerous as breast cancer. If your husband is at stage 1a there is little to worry about. The article above does not use live humans only their blood. I use the sun to get natural U.V.B. in the summer and wear sandals to keep lesions off my feet. At one point I had 75% of my body covered with lesions. Now I am usually clear. I have some problems if I get an infection during the winter as my immune system has a full time job of fighting cancerous t-helper cells in my immune system. An important role in this is played by my healthy T-helper cells. Poetic Justice or what.
Use the mainline treatments but get a blood test for vitamin D. Then add enough to bring yourself up to recommended levels. I take 4500 I.U of vitamin D but that is not the important number. The important number is the blood serum level of D Oxy 25 (Blood vitamin D). I find this regimen makes other medications I take more efficacious. It also reduced the amount of cortisone cream I used drastically.

I doubt this works on tumours or other cancers as effectively as it does for cutaneous T-cell. Good luck
Go to Top of Page

Scared-Wife

2 Posts

Posted - 10/04/2012 :  12:34:52  Show Profile  Reply with Quote
Hi maurauderottawa,

Thank you for taking time to share your experience,

Here is my husband experience:

In 2011, He started having small dark patches on his body that were spreading slowly over a year, doctor was treating them as Psoriasis. They took even biopsy during that time an came back negative.

After 1 year, he went to see his doctor who happened to be on vacation, He saw another Dermatologist who just by looking at the lesions, he told him I have to take some biopsy, after few days we got the result that it was CTCL cancer. The second doctor explained why the first biopsy came negative, is because he was using steroid at the time of taking the biopsy which is wrong, you have to quit applying that at least 2 weeks before the biopsy because steroid kills bad cells.

So he started taking those UV treatment and moved to another doctor who prescribed him another kind of steroid (HALOG) which worked way better than the first prescription but still the improvement was very slow, so one day i was doing my research and found that for some of the patients, Sea water and sun worked very well for them, so we started going to the beach every 2 weeks based on our work schedules, and let me tell you, an improvement of 80% within few weeks,

At the beginning we tried to go organic, eat healthy, use Hanuka honey, Black grape juice after a day of fasting... but we saw a tremendous improvement with the beach.

Now that it is winter, we ll do as you have been doing, he ll go for vitamin D test and try to fill the deficiency with D supplements,

One more thing, I booked an appoitment in UPENN cli nic where they have dermatologists doing research on this rare kind of cancer, the doctor told him that he is in good shape and they dont know the cause of this cancer and there is no sure solution or cure, you have to follow what is working for you.!!

Now he is going every 6 months checkup, he just had results this morning and everything came fine, Thanks God.

I am sharing my husband experience since it is a rare type of cancer and references are limited, and I hope it helps someone out there,

Thanks,

Scared Wife.




Go to Top of Page
  Previous Topic Topic Next Topic  
 New Topic  Reply to Topic
 Printer Friendly
Jump To:
Skin Cancer Forum © 2013 www.topicalinfo.org Go To Top Of Page
Snitz Forums 2000

Disclaimer: The three most common types of skin cancer are basal cell carcinoma, squamous cell carcinoma, and melanoma. While melanoma is the most dangerous type, keep in mind that any cancer and potentially some cancer treatments can cause injury or death. The various views expressed in these public forums should not be considered as medical advice. See your qualified health-care professional for medical attention, advice, diagnosis, and treatments.